What is Multiple Myeloma

Multiple myeloma (also known as MM, myeloma, plasma cell myeloma, or as Kahler's disease after Otto Kahler) is a type of cancer of plasma cells, immune system cells in bone marrow ...

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Discussion:
Stem cell transplant advice / pointers
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It looks as if I will be trying an autologous stem cell transplant in the very near future following a pretty good response to Velcade/Dex chemotherapy.

I am seeking pointers and advice from folks who have undergone this procedure.

Blessings,

Tom
Posted on 02/20/09, 12:02 pm
42 Replies | Most Recent Add Your Reply
Reminder: This is a support group for Multiple Myeloma. We trust you will do your best to remain positive and helpful. For more information, see our rules of the road.

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Comment:
Email me when others reply to this topic help
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Reply #41 - 09/15/09  2:42pm
" Past the 100 day mark post BMT. I am about 90% fit and have been out grooming a bamboo grove. On Saturday I danced for around 12 hours (dances of univesal peace) and did a bit of whirling.
The dental issues were resolved by completing the root canal and crowning the tooth. Those cheap 2 AA cell battery powered toothbrushes currently being advertised are prettydarned good if you have never tried one. I will probably resume Zometa in a week or so now that dentists, endodontists, and oral surgeons have all had their way with me, the walletectomy was a success!
Still mildly anemic according to the numbers but I have more or less always been with no ill effects.
A little neuropathy in the fingers and a bit more in the feet but mostly just nusiance. My sense of smell might be returning but it is still not quite right.
Alive is good.
Be Well, Tom "
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Reply #42 - 09/17/09  12:23am
" Congratulations Tom!!! Here's hoping that you continue to go from strength to strength and that you attain CR in the near future and that it lasts for a very long time!! I've found the the PN tends to get better over time, until you reach a point where the residual remains -- and it sounds as though you are still regaining feeling so you will certainly have a way to go. I've been left with a slight residual, but it doesn't cause me any real problem and is a small price to pay for the ongoing health that I am stil enjoying!! Well done and continue the good work!! Cheers, Cath "

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