Multiple Myeloma Support Group

Monica, I agree with Mil. You have to find an oncologist that you like. It's sooooo important to your treatment!

Thanks to everyone for your replies. I agree with the others Monica. Kick the current oncologist to the curb.. There is no excuse to be treated poorly by a DR>
I was very impressed with mine. He sat right beside me and explained everything. Values etc.

Good luck to you. Keep us posted.

terbear,

I'v been in touch with my MD regarding tests and so on. She knows that I don't like my oncologist but wants me to continue seeing him. I tried others but since my oncologist is the head of the dept. none of them will touch me.

Please let me know how you continue doing as I think you and I are still in Stage 1 and I know as little as you do.

Take care,
Monica

I have MM Osteoporosis,rheumatoid Arthitis and Osteoarthritis, That runs the drs. nuts, they all get in the action.

I also have MM and drives Onc crazy I also have Lupus,Sjogren and thyroid diseases so many diseases its drives any one crazy
mill

millmill81
I am being treated for 30 different condishion, the drs. ask me "why are you steal alive lol"

My dear Husband was dx with stage 111 mm about three months ago. His protein was 47 and the cnacer cells in the bone plasma was 65 - 70%. He did one lot of chemo but got so sick he couldn't do it again. He is on steroids and it has brought his protein down marginally in the last month (2 points). The steroids seem to make him feel a bit better but because he has a few other diseases as well most of the meds they can give him would interfere too much with these other diseases. The steroids put his blood sugar levels up through the roof and his insulin meds have doubled over the last two months (He has insulin dependant diabetes). If they cant get his BSL's under control they said they would have to take him off steroids because with bad kidneys, and bad heart the high sugar levels could cause him to go into cardiac arrest or renal failure and either one could kill him sooner than the MM. We are utterly confused as to which way to go. As our wonderful G
P said to us a couple of weeks ago....damned if you do and damned if you dont.

Terri- is smm your current dx? Margaret's Corner (blog) discusses curcumin- Margaret was smm and now mgus after curcumin with declining mgus, proteins, etc. Also, beating-myeloma.org and its curcumin patient study highlights curcumin experiences-

i can only tell youhow it has progressed in my mom.it started as a pain in her right arm.she thought she had wacked it or something.by the time she got in for a scan,it had eaten the bone in her upper arm and they had to put a rod in from shoulder to elbow.the it went to her vertebrea.they have a pretty cool proceedure for replacing those.then she went into remission for about 9 months and they had to remove some jaw bone about three weeks ago.tomorrow is chemo day so ill find out her levels then.mom is 74 and shes a fighter , it is very hard at her age to keep it up.i'll take some notes and tell ya what i can tomorrow.i am also curios to what your treatment plans are? mom does thalamid excuse the spelling,zometa,and a cycle of steroids before her chemo.

Terri-

You are 44 and newly dx? Dx with smm or full blown myeloma? Either way it seems as if your prognosis is better than most and you are relatively young and 13% blood levels are low. As a newly dx survivor, please consider drinking lots of clean water, supplementation to protect the good cells from future toxic chemos, nutrition, detox, exercise. Conventional, complementary, integrative therapies discussed at beating-myeloma.org- both links to studies and listserv/forum. David