What is Multiple Myeloma

Multiple myeloma (also known as MM, myeloma, plasma cell myeloma, or as Kahler's disease after Otto Kahler) is a type of cancer of plasma cells, immune system cells in bone marrow ...

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Discussion:
Smoldering Myeloma
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Ok, I am newly diagnosed and am still trying to wrap my brain around this. They found mine because I went to family doc because I was so tired all the time. Found high protein 8.1, that was in Nov. Told to come back in a few months and would retest protein. Went back in late Apr.
and it was 8.5. Sent on to see hematoligist/oncologist. He retested protein and did Bone marrow, and the whole gammit of tests.

Results were 8.7 on protein. It is monoclonal and my bone marrow showed 13%. Anyone who could shed some light on how their MM progressed would be very welcome.

Terri
Posted on 05/17/07, 09:05 am
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Reply #1 - 05/17/07  4:21pm
" I don't think I can be much help, but I just got lab work back and my protein is 8.2 and my calcium is 10.2 but my phosphus is low and potassium is high?

I have had bone pain in my hip for 4 years I was wondering how your calcium was? They have not diagnosed me yet. "
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Reply #2 - 05/18/07  12:46pm
" My calcium is fine, still within normal ranges.

Have you had a Bone Marrow Biopsy done yet and if so what did it show.

Terri "
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Reply #3 - 05/19/07  7:09am
" I can't tell you how my MM progressed. By the time I was diagnosed I was stage III and in horrible pain. I do know that normally it is slow growing. Thank God they found it relatively early with you. Are they going to start a treatment? "
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Reply #4 - 05/20/07  7:15am
" I have to agree with cherri its a slow grower I was Dx in Dec 06 I had high protein, calcium high, my lightchain kappa high my IgG Its high I done bone marrow biobsy 10% plasma cell but I was put on Dexthamasome 40mg in dec so I been taking for the past few months now before the BMB was done in april 17, next month I start thailomide well take care mill "
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Reply #5 - 05/21/07  2:48pm
" My husband had 15% myeloma in his bone marrow. He was out of hospital yesterday after autologois stem cells transplantation. He was treated first with VAD protocol and dexamethasone (VAD is chemotherapy given for 24 hours for 4 days then he was taking dexamethasone 40 for almost three weeks and then the second VAD cycle and so on for three cycles). He was in a stage of complete remission afterwards. Four months later hour got the transplant. He seems ok so far. "
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Reply #6 - 05/21/07  2:48pm
" My husband had 15% myeloma in his bone marrow. He was out of hospital yesterday after autologois stem cells transplantation. He was treated first with VAD protocol and dexamethasone (VAD is chemotherapy given for 24 hours for 4 days then he was taking dexamethasone 40 for almost three weeks and then the second VAD cycle and so on for three cycles). He was in a stage of complete remission afterwards. Four months later he got the transplant. He seems ok so far. "
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Reply #7 - 05/21/07  2:51pm
" My husband had 15% myeloma in his bone marrow. He was out of hospital yesterday after autologois stem cells transplantation. He was treated first with VAD protocol and dexamethasone (VAD is chemotherapy given for 24 hours for 4 days then he was taking dexamethasone 40 for almost three weeks and then the second VAD cycle and so on for three cycles). He was in a stage of complete remission afterwards. Four months later he got the transplant. He seems ok so far. "
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Reply #8 - 05/21/07  2:54pm
" My husband had 15% myeloma in his bone marrow. He was out of hospital yesterday after autologois stem cells transplantation. He was treated first with VAD protocol and dexamethasone (VAD is chemotherapy given for 24 hours for 4 days then he was taking dexamethasone 40 for almost three weeks and then the second VAD cycle and so on for three cycles). He was in a stage of complete remission afterwards. Four months later he got the transplant. He seems ok so far. "
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Reply #9 - 05/21/07  7:27pm
" Hi Terri,

My protein is 7.6% but I have like 4 different m-proetin bands and they all have different percentages. The highest is the 7.6%in Band #1, another Band #1 has a 0.6%, then Band #2 has 5.5% and the second Bamd #2 has 0.4%. \

I can tell that they keep going up but very slowly. I did have the bone marrow biopsy but the oncologist was not helpful or nice so I have only returned once after that and he won't disclose anything to me. I asked my MD but she keeps telling me that she'll call him and get the results. In the meantime I refuse to go back to him even though my MD tells me I should.

Hugs,
Monica "
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Reply #10 - 05/21/07  8:37pm
" monica if you dont feel contable with your oncologist change him find another oncologist but first get copies of all your blood work and your biobsy result take care
mill "

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