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First Lesion
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My husband has had MM for about 4 years. Stem Cell Transplant 3 years ago. He has been having arm pain for about 6 months but didn't tell his doctor because he thought it was muscular or arthritis. The doctor did a bone scan and thinks it is the myeloma. He is having a CT done today and we should have the results later this week. If it is the Myeloma he will have radiation therapy.
Has anyone ever had radiation therapy for a lesion? If so, what did you go through? I know it's different for every person but I just won't get to the doctor until later this week and just thought I'd put it out her and see if anyone has any info. Also, once the first lesion appears how long before multiple lesions appear? Thanks! Posted on 08/27/12, 11:57 am |
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Thanks for your response. Glad to know it is painless.
Did the radiation take the pain away completely? Have you had any other lesions since then? Thanks for the info. 
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Well for me it was different. I was having arm pain and ignored it, and one day I fell and actually broke my arm. The doctor put a rod in my arm and then I had the radiation. My arm has healed, but its not what it used to be. Three months later I had my stem cell transplant. About five months after that the doctor checked out my arm and said it was fine considering everything I had been through (transplant). He said if I was younger and healthier it probably would have healed better, but he doesn't seem to think its anything to worry about. I have not had any more bone problems like that since.
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Glad you are doing better and thank you for the information! My husband is convinced that this is the start of many more immediate lesions and that it is about time for him to go on medical disability. His bone scan came back good except his arm where the pain is located. So scary and so many unknowns!! It's good to be prepared but I hope he doesn't quit too soon. I would hate for him to have to sit around the house with nothing to do all day. He would get so depressed!!
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I haven't worked since the day I was diagnosed. I was working more of a physical job, and my back was so damaged by the myeloma that the doctor wouldn't allow me to go back unless it was very light duty. The company where I worked wouldn't agree to that, so I had to go on disability. So even though I'm doing well against the myeloma, my back will never be what it used to be. I thought I was just having back trouble until I was diagnosed. That's why I say that my whole life changed in one day. But, I'm alive and walking around and feeling good, so thank you Lord.
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I was diagnosed with smouldering myeloma August 2nd and within six weeks, I had a lesion on my spine. It was quite painful and they started radiation immediately. The pain subsided within a couple of days. I have 20 treatments and they last about 10 minutes each. There are side effects to radiation depending on your location, but just tell your doctor and you're totally comfortable. Like I got thrush.
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Thanks for all the comments. The oncologist said it was a lesion according to bone scan. The CT scan showed that it wasn't myeloma so she said probably arthritis. The general doctor said not arthritis because it's not in the joints so sent him for MRI. The MRI showed a bulging disk in his neck pressing on a nerve so sent him to pain management specialist. They gave him a steroid injection in the neck. It helped for about a week and now the pain is returning to the arm. I have to wonder what the oncologist saw in the original bone scan to make her think there was a lesion on the bone. Wondering if we are on a wild goose chase with the nerve issue? Oh well, such is life with Multiple Myeloma!!
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