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Hi everyone,
Just wanted to update you all. Husband had first treatment Thursday. It included Velcade, Dexamethasone and Zometa. Which as I understand are all the usual ones for MM. He seemed to do fine, no nausea etc. They've set him at Stage III. They don't do the M-spike thing, they use the light chains analysis and I'm finding all these terms too technical to process at the moment. Will just go with what the doctor tells us. He said, "had we not found this, you'd have survived 3-6 months. Also admitted he was surprised husband had it as he'd already had his 2 cases this year" Lol sorry had to laugh or I'm going to cry :/ We arrived home and husband decides to call his parents and give them the news. His father informs him his biological daughters H.S. graduation is the weekend, after telling us for 2 months it was June 23rd. So, then today husband decides to drive to Denver from Utah, catch a plane Saturday morning and fly to Missouri for his bio-daughters H.S. graduation. We thought it was 3 weeks away yet. With all we've been dealing with this was the last thing on my mind, sad to say. He was adamant about going. I FLAT out refused to go because he wanted to drive it. An 18 hour drive with my Fibromyalgia and arthritis in overdrive due to all the stress we've had in past two weeks was absolutely impossible for me, it would have put me in bed for 2 weeks. He is bullheaded sometimes and there was NOT a thing I could have said or done to stop him from going. Now I am concerned because he just had a chemo treatment and will be flying and then in a large group of people for the ceremony. Is my concern unwarranted? I also told him he could no longer eat sushi, his favorite meal and he was quite upset about this also. I am starting to feel like his mother or the warden LOL I just want him well again, and finding it ridiculous that I am the one that's having to be the meanie about these things. Thanks for listening, hope all of you are doing well as can be, Marie (hugs) Posted on 06/01/12, 11:12 pm |
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My first Zometa treatment left me with flu like symptoms for three days with a low grade fever, too. It also elevated my bone pain. He may not have this side effect so good luck on his trip! Don't feel like a meanie! Your husband feels like he should still be in control of his activities even though his daily life is changing at a face pace! You need to take care of yourself, too! My husband is my caregiver and he has congestive heart failure and would like to retire but we still need the health insurance for me! He can be on Medicare in February of next year but I still need private insurance. We all have our issues and it certainly can zap your strength and resolve. Somehow you find the answers you need and you move forward! This is not an easy disease but I found out the more questions I asked of my doctors and nurses and what I read here has really helped me! I will pray for your family! 
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Thanks for replies suzieq and Bamboo. As always your informative replies are appreciated. Have a great day and take care, Marie (hugs)
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Marie,
We are caregivers and yes sometimes feel like a meanie myself. I get "the look" and realize Ken is not 12 years old. It is hard and in the end our contribution is appreciated cause they know how much we care. Still, they are responsible adults and we all need to remember that,too. A very fine balancing act. Hugs, kris xx
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in the beginning I treated my husband like a child, once he started to feel better I started to ley him do things on his own..men especially feel useless and weak when they can't do the things they used to do..my husband is the type who never asked for any help..however he has had to ask for help over the past couple months...and I know he hates every minute of it but I keep reassuring him that he will be back to doing those things for himself... also he never had any bad side effects from the Zometa or velcade..
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Thanks for the kind replies ladies. I am getting better at dealing with all of this. It just hits you at first, the enormity of it all, but once it sinks in it is easier to deal with. I am just taking it one day at a time and am going to enjoy being with him and caring for him as much as possible because I love him. You have all been a valuable source of info and encouragement and I thank you from the bottom of my heart. He will return late tonight after he drives home from Denver. The bullheaded man has asked me to bring him to emergency once he returns. He is in severe pain and believes he may have broken another rib or 2. Even the 30mg MsContin is not relieving the pain for him. I'm sure doing all this driving he has not taken it twice a day as directed either. Just wish he would have stayed home, but I know he HAD to be there for his daughter. He's a good man. So we will see if they will give him some pain relief tonight. He missed the actual graduation ceremony, was exhausted and sleeping, but was able to attend a get together afterwards. All that matters I guess is that daughter knew he was there and he made the effort for her. She was in tears when he attempted to tell her he wasn't coming. So yeah he's exhausted and in pain but will be returning come tonight, I cannot wait to see him!! Thank you all again. Please take care of yourselves or your loved one (((hugs))) Marie
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Sending you and your husband deepest affections, my darling friend, Marita.
So glad you found this lovely forum. Affections and good thoughts to each and everyone of you here ...
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I had the same diagnosis as your husband (stage 3, would've been dead in 3 months) in January of 2010. I'm still here and feeling good. Good luck to him.
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Thanks rich, for your reply, it gives me much needed encouragement at this time. He returned last night, off to ER we went. He DID have several more fractures, plus fluid on his lung. They treated him with 2x Dilaudid i.v. (sp)? Sent him home with Fentanyl patches and Ativan as a muscle relaxer. Tomorrow we go to Oncologist for a possible second Velcade treatment. I so wish he hadn't made this arduous trip but know in my heart it had to be done. His daughter may have never forgiven him for NOT being there. Teenagers! Thanks Fata for you unending encouragement you truly are the dearest woman I have never met. Hope you all are well as can be, including the caregivers. Agree with Fata this is a lovely, supportive forum. Take care all, Marie
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I have been on Zofran, Decadron and Velcade and only symptom I get is constipation, leg pain started in 5th round, though only annoying level. My hip pain had faded by then to almost nothing.
The steroids make me hungry as hell (more than my normal, that is). I also get mean and easily frustrated with the little things. Good luck!
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