What is Multiple Myeloma
Multiple myeloma (also known as MM, myeloma, plasma cell myeloma, or as Kahler's disease after Otto Kahler) is a type of cancer of plasma cells, immune system cells in bone marrow ...
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Was just diagnosed with MM, stage 1 last friday. My wife is taking this harder than I am. I'm due to have a VAD implanted with-in the next 2 weeks. Could anyone recommend a resource for my wife to help her cope. Once the chemo starts, I'm really going to be worried about her emotional welfare. Thank you any help that you could provide...Mike
Posted on 09/07/09, 06:09 pm |
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I don't know if you have heard of the International Myeloma Foundation. I think their site is www.imf.com. - if not just google it. Lots of information for your wife and yourself.
Best wishes. 
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IMF is a wonderful place to get information. It will take time. I am interested in the fact your in stage one and starting treatment. Tell me more about that. I am in SMM or stage 1. I will not start treatment until Calcium and H&H become abnormal.. Good luck to you and your wife..
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To DawnMar: Thank you for the information about Myeloma foundation. I've found a lot of good resource material.
To achankins:There really is not a lot to tell as of now. My consult for a medi-port (VAD) is next Thursday. The day after I see my oncologist and have framed a lot of questions for him. As the treatment (and answers) become available I will share them with you. The hardest part is the unknown. How long is the life expectancy and the reaction physically and emotionally to treatment? It's hard to stay upbeat but it's a priorty. You do this not only for yourself but your spouse. Are you married or long term committed? If so, your significant other can be a source of strength.
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To anchankins: Had the port put in last friday. Some discomfort and had too sleep with head elevated for one evening. Was given a scrip for pain medication but was not needed. Tylenol seemed to work fine.
Had the first round of chemo yesterday and was not bad! Everyone recieving chemo at the same time were in good spirits. They do a blood count just prior to each new session (I go twice a week for 2 weeks, then one off) They gave me a little liquid I.V. bendryl for relaxation plus an anti-nausea medicine. My regular e-mail addy is smsgtmike@hotmail, if you would like to learn more about first treatment.
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