What is Multiple Sclerosis MS
Multiple sclerosis (MS) is a chronic disease which affects the brain and spinal cord. MS can cause a variety of symptoms, including changes in sensation, visual problems, muscle we...
Join Now
In Category:
Treatments
|
Officially on Fingolimod ext study
|
Watch this |
| View More Posts Ignore |
I was offered to be in the extension study for Fingolimod where there is no placebo, so now I can officially say I am taking the drug. I felt that I was already on a dose before this though and feel no different than when I was on the last study where I had the chance of being on the placebo.
Is anyone else on this drug? Posted on 10/24/09, 01:10 pm |
| 4 Replies | Add Your Reply |
| View More Posts Ignore |
No from what I have read there are too many side effects that I just can't chance with two teenagers at home. Good luck on your new medication though 
|
|
|
|
||
| View More Posts Ignore |
No I've never heard of it. Is it one of the pills?
|
|
|
|
||
| View More Posts Ignore |
It is one of the pills. I was on the study prior to this one where I had a 1/3 chance of having the placebo, but I think I was on it from the beginning. I do not have any side effects. Though, I will say I did have more frequent UTIs and upper respiratory infections it seemed like when I first started. I love being able to take a pill each day and not have any side effects or anxiety over shots. I used to get so sick on Avonex. I also had relapses on Avonex. I have been on Fingolimod now for over 2 years and have NOT had a relapse. I consider it a miracle for me since my relapses were fairly close together before. i definitely recommend it. As with any medicine, there are possible hazards. In my opinion, this is one of them that has less than the ones already approved. Being in the study lets me be able to be watched more closely for any issues. I get all the tests for free, along with free medicine. The tests and doctor's visits include MRI, CT, blood work, eye exams, pulmonary, echos, and skin exams all no cost to me. I hope you are able to consider this.
|
|
|
|
||
| View More Posts Ignore |
I'm in the study currently and just wrote a journal entry detailing my experience, which has been nothing but positive. I'm not sure what the "too many side effects" Mrsjuice is referring to are, but other than upper respiratory infections and UTI's, side effects are minimal, especially if you are on the lower dosage, which I believe I am. At any rate, to you and everyone else involved in the trial, be well!
|
|
|
|
||
| Add Your Reply |
