Multiple Sclerosis (MS) Support Group

this is the first I've heard of CCSVI.. what are the symptoms & is this something that is usually check for & how do they check for this..always happy to lean more..Thanks!

DITTO on never hearing of this before with MS (which I've had over 23 years...). Will read the link in your post... Thank you! xoxoxo Cj

There is much to be learned about CCSVI and MS. Here is a quick overview: An Italian doctor, Dr. Zamboni, has been researching the correlation of cerebrospinal venous insufficiency (CCSVI)in MS. What he has found is in 100% of clinically diagnosed MS patients, there is a blockage or a stenosis in the internal jugular veins and/or the azygos vein. These blockages in the veins reflux the blood into the cell membrane of the brain. The deoxygenated blood is seen as a foreign substance and the immune system becomes active. The theory is that if the blockage is removed, the blood brain brarrier will repair and close. Dr. Zamboni is treating the blockages by a balloon procedure (angioplasty); Dr. Dake at Stanford is treating with stents. I was seen by Dr. Dake in June; I had a blockage which is over 3-1/2 long --he used two stents to open the left jugular vein. RRMS patients are benefiting immediately - fatigue, heat sensitivity, depression, and brain fog are symptoms that are no longer present in patients.
This is all new information - you need to educate yourself by reading and re-reading the medical reports and journals. Here is a link to Dr. Zamboni's website - look under Publications for his writings. http://www.fondazionehilarescere.o... Be sure to read the fifth article listed - this will give you a good understanding of the theory. Also, go to the Facebook page on CCSVI http://www.facebook.com/pages/CCSV...
and as I mentioned before go the THISisMS website http://www.thisisms.com/forum-40.h... We have all the research tagged in the threads marked with a "Sticky" at the top of the forum. Read the anecdotal reports from members of the forums who have had the procedure. Read this thread from TIMS - one of our member's went to Zamboni's conference in Italy as an observer - these are her notes - quite interesting. http://www.thisisms.com/ftopict-81...
Lots of information to absorb - The TIMS website is a great resource. We are updating and researching on a daily basis.

Thank you so much. I have been following the conference updates and discussion at MS-diet@yahoo.com. You put it all together in ways that make sense. This is the most exciting news I have seen in some time. We in America are so tied into drug companies that we can't always keep track of the newest and best therapies.

Thank you for bringing this info. I have read and the developments are very interesting. Can't wait to see where it goes from here. Blessings to you.

You are welcome! Keep checking in on the Facebook page or the ThisIsMS website. We are constantly updating. The next report to be published will be Dr. Zamboni's results of his Liberation Procedure. It should be out sometime this month.

Hello.
Thank you so much for posting this info. I have gone to the other sites and have read a LOT! :) Looking forward to reading more. Question: Why has Dr. Drake chosen to do stints instead of ballooning? Ballooning seems a bit less invasive and does not require the cumadin (spelling-sorry). Thank you again. Dee

I have thrown together a few ccsvi resources on my homepage http://healingpowernow.com/

Check the Canadian documentary, and my stenosis/stent images from recent treatment by Dr Dake at Stanford.

At the end of the w5 report last night on the Liberation Treatment, a question was posed for what we can do. One of the things they mentioned is that we have to contact MS Socities in our countries to put pressure on them telling them that we demand research into this. I don't know about y'all, but I've already sent my e-mail to them LOL. For fellow hosers like me in Canada, this is the contact information for the MS Society of Canda.

Phone: 416-922-6065
Fax: 416-922-7538
E-mail: info@mssociety.ca
Address: MS Society of Canada, National Office
175 Bloor Street East, Suite 700, North Tower
Toronto, Ontario M4W 3R8

This information is so encouraging and hopeful, I will absolutely add your website to mine, www.msrebel.com I found a local Neurologist that I will be seeing for the first tomorrow, vision has always been my biggest problem and he specializes in that so I will be interested in what he can do to help me. I have had symptoms since I was 13 and am 47 now, I'm not naive in expecting to become all better, but am now very hopeful that this new treatment may help more than other MS treatments I have tried. In my family there is a history of varicose veins, my mom, her sister, my brother Brian, a cousin and I have one on my right inner thigh so I would not be surprised if I have some blocked veins. It will be very exciting to follow along with others with their journey after treatment. Yahoo!!!