Multiple Sclerosis (MS) Support Group

I have never used any of the crab drugs. I presently have occasional face burn othewise, no other symptoms. I had MRI 7/09, they stated extremely slight progression. So I continue on, I will consider later if I have too.

I was diagnosed in April with 3 cervical lesions and negative thoracic and brain MRI. One of the lesions was huge however and neuro was surprised to see how well I looked clinically. I thought about not agreeing to the Avonex due to still running and working as a PT. Neuro said hindsight from a wc would be 20/20 and urged me to start Avonex which I did. I will say I have not felt as well overall since starting Avonex, but who's to say the MS has not gotten worse to make me not feel as well? And since there is no way to know if the Avonex is working, I don't really want anymore MRIs. I don't know that I want to know if I have more lesions. I am still reeling from finding out about the MRIs I had done in April. I do know that the consensus is to start the CRAB drugs as soon as possible early in the disease. k

no meds for me. had tumefactive ms. docs at the ms clinic in toronto say that it has a low rate of recurrance so no medication so far. i have a followup with my neuro this month and may inquire about going on Avonex.

I am not on any DMD but I do take Nexium, Reglan, Lyrica and 120 mg of Cymbalta. I am not on DMD because I went at least 30 years without being diagnosed and I am really lucky because my case is mild. My biggest symptoms are muscle pain and fatigue but so far, thank God, I can walk, talk and pee appropriately. I was not comfortable taking something that had a primary side effect of fatigue - since I have so much fatigue already. Good luck!

I have never been on the crab drugs. After diagnosis, I went on the
Best Bet Diet for two years and have since techinically gone off of it though I do avoid gluten and beans but not very strictly. I take vitamins and a few supplements and aspirin. I have had MS for about six years, four with diagnosis. I have had no relapses for the past two years and am relatively symptom free with the exception occasional mild surface numbness in parts of my hands but it really is barely noticeable and does not handicap me in any way. I have read all the posts of people on the DMD's and am not convinced in the long run, that it really improves one's overall quality of life or prognosis. My MS may get worse, but I am not convinced that it will change my future, so for now, I am enjoying my present without dealing with injections, reactions, etc..... Having said that, I am trying to get my doctor to prescribe LDN. I believe it is a drug that works with my body naturally without the negative side effects and am very impressed with the testimonials I have read of those who have been on it for quite sometime.

I have had bad reactions to all the injections and cannot use them.
I sure wish there was something anything that could lessen the flareups.

weaver--

There is Tysabri which is a monthly infusion and the first of the oral drugs should be out later this year with many more following after that. So hang in there and don't stop looking because of bad effects from the current drugs that are available.

Yes, LDN should stop progression. Without needles or side efects.

Plan to be on it forever as it is working so well for me.