Multiple Sclerosis (MS) Support Group

larry why not tell ppl that if their doc is not willing to give them a rx that they can go to LDN sight and find the way to get it with out rx. pharmacy in Canada will sell and ship, ldn sight tells how to mix. if it is so safe why not go that way?

Oh, good point.

http://goodshape.net/HomemadeLDN.html is how to make it yourself

http://www.riverpharmacy.com will sell you ReVia 50 MG tabs so you can make it yourself.

seems that being proactive and not just blaming docs would be less stressful

Yep, it sure is.

Why did Dr. Bihai not publish any of his findings like other Docs do when they find a drug that think will revolutionize to world? It always makes me nervous when Doctors claim to have the answers but refuse to publish their findings so other doctors can prove or disprove the theory. I have been watching LDN with some skepticism for some time now and very much hope it is all it is claimed to be, but I will wait for trials before I jump in. When I talked to my Nerou about LDN, he knew all about it but felt it was a invention of pharmacies, funny how all sides blame the pharmaceutical companies and now even pharmacies. I am happy to stay with my Avonex until LDN has a proven track record. Everyone hates the CRAB’s because the big evil pharmaceutical companies made them, very funny, read the history of LDN, same thing, I don’t get peoples reason some times. So until a medical breakthrough with LDN happens, I will stick with proven meds and let others play with the bee stings and snake oil and such. I would bet the bank that there are folks out there that swear the bite of a rattle snake has kept them exasperation free for years and cured their MS, think about it. I’m not jumping in cause some guy on the internet claims it works, I am waiting for real proof.
Tim

Even if LDN only has a placebo effect, it is nuts that folks have to go to this extent to get such a small amount of a medicine that seems like it cannot do any harm at the least. I am amazed at the posts I read on this website from people taking very strong narcotics. Some doctor must have prescribed those, but they wont prescribe LDN. This is crazy!

"Why did Dr. Bihari not publish any of his findings like other Docs do when they find a drug that think will revolutionize to world?"

The MSWatchers yahoo group LINKS section has all his patents.

http://health.groups.yahoo.com/gro...

http://health.groups.yahoo.com/gro...


He's shared his findings with many, they're on file, maybe the round one. That's why Dr. Gluck had his webdesigner son create http://www.ldninfo.org , well, http://www.lowdosenaltrexone.org , 7 years ago. It's well out of Dr. Bihari's hands now, his 33 years are up, now the patients are spreading the word and those who benefit are grateful. Those still alive, I'm sure, Thank God, for hearing about it and not being skeptical about other's successes. Especially the ones at each of the 3 LDN Conferences http://www.ldninfo.org/conf2007.htm


"It always makes me nervous when Doctors claim to have the answers but refuse to publish their findings so other doctors can prove or disprove the theory. I have been watching LDN with some skepticism for some time now and very much hope it is all it is claimed to be, but I will wait for trials before I jump in."

Hey, it's your health, your choice, good luck to you. I have an 11 year history with 10 full blown exacerbations, the start of #12 brewing, and then an awesome journey journaled of healing and amazing biological and medical events http://www.larrygc.com/mystory

I now also have a, Going on 84 year old, Dad, who was and I quote, given "SIX MONTHS TO LIVE", back in March 2007. They did chemo on Tuesdays and we got him on LDN starting 3/28. They had to put in stents in his kidneys. When they did a CT scan 9/4 they were stumped and amazed, they had to get those stents OUT, both sides. They stopped the chemo immediately. They said his tumors were 1/2 the size as March. They did another CT scan in December, he's stable and in remission. The oncologist said he NEVER saw this reaction from that chemo they did, didn't understand it and were totally amazed he's doing so well.


"When I talked to my Neuro about LDN, he knew all about it but felt it was a invention of pharmacies, funny how all sides blame the pharmaceutical companies and now even pharmacies."

Wow, Some invention! .498 per dose benefits the pharmacy? How much do the caps and compounding cost? The filler and naltrexone powder in bulk costs pennies. If you buy 50 MG tablets of ReVia from another country it will cost .44/dose.

There's no money in it. Or is that the Lucille Ball method of profit? We'll do it in BULK?

"I am happy to stay with my Avonex until LDN has a proven track record. Everyone hates the CRAB’s because the big evil pharmaceutical companies made them, very funny, read the history of LDN, same thing, I don’t get peoples reason some times."

I made my decision to NOT do any of the CRABs because everyone seemed to get worse or deal with killer side effects and to me, overdosing on pain killers an hour before, and an hour after, and then sleeping a whole day after it isn't my idea of fun.

I thought LDN was going to do nothing for me. After suffering for 11 years, and big ones in 1986, 1981 & 1978, the last 1723 have been quite awesome. My worst days on LDN had been consistently better than any days in the last few years prior.


"So until a medical breakthrough with LDN happens, I will stick with proven meds and let others play with the bee stings and snake oil and such. I would bet the bank that there are folks out there that swear the bite of a rattle snake has kept them exasperation free for years and cured their MS, think about it. I’m not jumping in cause some guy on the internet claims it works, I am waiting for real proof."

We had it. Dr. J McCandless' work with autistic children proves it's no Placebo or our imagination.

The children don't know they're taking it:
1. they're Sleeping when it's applied
2. it's applied transdermally

There's minimal "special non-responders". The rest are doing GREAT. http://health.groups.yahoo.com/gro...

Thanks :)

AIUI, OC, YMMV, HAND, NCFA :) :) :)

not the whole truth, I posted a while back on the LDN boards asking for people that LDN did not work for, I wanted all sides before I jumped into with both feet, I had several reply back that LDN did not work for them at all. Even some here have posted that. And Dr. Bihai should have written in a peer journal if he was to do it right, it is how the system works. Would you not agree that the world would know the truth about LDN by now if he had just published his work?

ALL DOCTORS HAVE TO PUBLISH SOMETHING IN ORDER TO RETAIN STATUS OF BEING FIRST CALLED AN M.D. OR PH.D. AND SECOND TO BE RECOGNIZED BY THIER PEERS...I should know....I was going to be a doctor until I dropped out of med school....LDN is being tested and the findings are being published all over the world by "credible" sources.....one should question the role a government has in mandating the healthcare system....i.e. children have taken tylenol for years and now they can't ....what effect has that done on us as we are the product of the premiere....personally after feeling the effects of the crab drugs...no thanks....LDN is my sweetheart and it's giving me a life back....people need to research, research and research again until they are thoroughly satisfied with the answer and if another questions pops up then research again.....i too had reservations and wanted to "see" how many persons have not benefitted from LDN....there were more pro's than con's.....be blessed! research and be blessed again and remember all doc's have to get published there are no exceptions.

With my experience, my blood on LDN, and others and their blood on LDN, and their results, I don't need any more than that.

Most of those who it don't work for are usually found to have done something wrong or had something wrong. Many people found they had LYME and not MS.

If LDN Working is like plugging a Small Hole, and there are Too Many Holes, LDN won't work. If the body has had a medical history it can't recover from, it won't work. If someone had had too many drugs stored and LDN causes Instant Withdrawal and then Panic, get dropped and evasive invasive actions, well, then it won't work.

The Failures are either cockpit or IS errors, not a Failure of LDN. Obviously it's not for everyone.

But MY Dad is ALIVE and DANCING with healing cancerous tumors. If LDN stopped working for me tomorrow, I've had 1724 days of a great life, and my dad's now had 3 more months than the best doctors in Florida Gave him To Live.

Brenda's Mother is alive with breast cancer in remission and healing, Brenda's grandmother is alive with cancer in remission and altzheimers healing. The 3 of them ran the last LDN Conference because THEY'RE STILL ALIVE. 3 generations were dying and now living to tell about it.

HEARING about LDN is a Godsend, DOING LDN for me is LIVING, for my Dad, it's a reprieve, for my brother, it's breathing.

I take LDN 3.0 MG and a B1 100MG vitamin every day.

Thanks :)

AIUI, OC, YMMV, HAND, NCFA :) :) :)