What is Multiple-Myeloma
Multiple myeloma (also known as MM, myeloma, plasma cell myeloma, or as Kahler's disease after Otto Kahler) is a type of cancer of plasma cells, immune system cells in bone marrow ...
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Monday November 23, 2009
Venting Stories
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Got myself into a kind of black mood today. Had to drive quite a distance to turn in my 48-hour Holter monitor. Because yesterday was so dizzy, I was kind of scared to drive that far and I didn't feel like I could ask anyone to take me. I could have, but I told myself that people are anxious to help when they first find out you're sick, but in short order they feel put u...
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This morning I'm having coffee with a woman I thought was interested in being part of a support group for A fibbers. She was the only one who responded to a little ad I posted on craigslist. But almost immediately she backed out and yet seems to be interested in continuing to get together one-on-one. Her favorite subject though is golf, a sport I've never played and have...1 Recommendation2 Comments
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I am venting again. I recieved my PPO from the insurance company today. Once again I owe around a thousand dollars to the doctors after my insurance pretends to pay. The first eighteen months after I was diagnosed they didin't pay not one bill. Now it is always either my deductible hasn't been met on this area or another. As long as I can have my labs and xray done at my hospital th...1 Recommendation1 Comment -
Well I found out on Tuesday (election day) that my 79yr old father has prostate cancer.
I took him for a CT Scan and we will talk to the doctor on Thursday 11/11 to find out what
the treatment will be. We were told maybe the raidiation seeds, maybe seeds and beam raidiation, I'm worried about side effects etc. because Dad is just the type to say "I'm not doing this an...1 Recommendation1 Comment -
It's been 18 months since my diagnosis of MM, and I'm more depressed now than I have ever been, and more lost and confused than a grown man has the right to be. I've gone the course with three different anti-depressants and nothing seems to be working. To make matters worse, I've not slept well for over a month since I had a sinus operation to help stop a sinus infection tha...1 Recommendation7 Comments
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Well, here we go again. Dex is soooo not on my good side. I suppose that part is self explanatory.
The thing is, I called his dr office yesterday and told them all that Tom is suffering and they set up a meeting with the P.A. Yes, they addressed my concerns, however the only thing they changed up was the frequency of the Dex. Now he only takes it on chemo days (twice a week). And today the Jekyll...1 Recommendation2 Comments -
Well, it's been a while since I've updated my journal. A lot has been happening.
Tom's blood count was so low that chemo was cancelled and a transfusion was recommended. He's so stubborn, he wouldn't accept it.
He's sooo depressed and I'm at a loss as to help him out of this abyss. He is going to see his Dr about this but in the meantime, he's developing pneumonia. ...1 Recommendation4 Comments -
Things to be grateful for:
Waking up this morning
Family and friends
Oxygen and water
God
I know I have many more things to be grateful for but they escape me at the moment.
Last night, Tom went thru an angry phase. I encouraged him to get it out because maybe that was what he needed. I'm still not sure if that's what he needed or not. The doctor put him on Lexapro and xanax for anxiety but it ...1 Recommendation1 Comment -
I have been absent from journaling or corresponding with everyone because I have been soo incredibly busy. I now have an opportunity to catch up.
Last night was one of the worst. This storm keeps on raging and sometimes I feel as though I'm barely staying afloat.
As I've probably stated previously, Tom went for his bmt consult and all of the information was designed to inform and comfort hi...1 Recommendation -
I have been strong and supportive since this roller coaster ride
began just a couple short weeks ago. Bill my husband of 12 years and love of 15
was diagnosed with MM. He has few symptoms other than a very swollen spleen...
but his blood levels are VERY low. He was supposed to get chemo...already
changed in 4 days to TH. & Dex....as his blood platlets are too low for
a chemical trial and for the c...1 Recommendation1 Comment
