What is Multiple-Myeloma
Multiple myeloma (also known as MM, myeloma, plasma cell myeloma, or as Kahler's disease after Otto Kahler) is a type of cancer of plasma cells, immune system cells in bone marrow ...
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Monday November 23, 2009
Positive Stories
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Today was finally cardiologist day. First I had an echocardiogram, which apparently showed that my heart is in good shape except for the A fib. That's a relief. Then saw the cardiologist who talked fast and told me to wear a Holter monitor for 48 hours starting right away, then come back April 1 for a nuclear stress test (which doesn't sound lovely), and a follow-up appo...
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Saw the head of the Cardiovascular Division at OHSU today who specializes in A fib and has training as an electrophysiologist. He was kind of an odd duck, wearing a black and white striped shirt that belonged in a barbershop quartet and not making super good eye contact but that seemed more out of shyness than arrogance. Anyway, after looking over my tests and checking my heart he sai...1 Recommendation2 Comments
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I can't believe it's been 2 days with no appreciable chest pain and so far this morning it looks like the trend will continue. So much more comfortable to try to sleep too during the night. Went to the OHSU anti-coag clinic and got my INR which was 2.0, which means the low end of the range and my blood thickening. So they had me take a whole dose yesterday to thin it bac...1 Recommendation2 Comments
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After writing a slightly annoyed response to the invitation to leave DS.org., I've decided to stop journaling daily here and just post weekly from now on. Also not going to be using the forum here. But I don't feel like I need to leave the INTERNET. Or being proactive about my health, which to me means trusting my own intuition about my body and my medical caregivers and...1 Recommendation2 Comments
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As I watch our stock market tumbling I find myself feeling cynical, how did these folks get us IN to this mess! I then remember one of the the coolest coolest things about my job....THE PEOPLE...I get inspired all over again and I have to think we will all be ok. When I do talks in schools or community groups I tell kids about the long haul medicine entails&nb...4 Recommendations23 Comments
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Hello world, i went for a check up today (26/09/08), around 10 days short of my first years anniversary of being free of my fruit loop cells. The normal things happen, get there for the right time and then sit there for 3 hours until the doctor calls you in, but, believe me, it was well worth the wait, to hear my doc say "there was no sighn of the myeloma what so ever" was out of this w...1 Recommendation2 Comments
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I had my Dr. appt. yesterday... I just love her so much..
I cannot remember if I told you about taking candy and everybody a light bulb ornament to the clinic before Christmas.. well I did.. and they were all tickled to death. Well last week. I recieved a card in the mail from my new Dr. thanking me for the kindness shown to her and the clinic and how she looked forward to caring for m...1 Recommendation3 Comments -
GUESS WHAT??????
I had a good day yesterday!!!! YIPEEEEEE!!!!!! You all can't imagine what it done for my self confidence... I felt a little like WONDER WOMAN!!!! Wish I looked like her LOL
I guess when you have alot of down days, you forget just how good it feels to have a good day... IT WAS WONDERFUL!!!!
Except visitation to the funeral home last night.. the lady I told about that they had gi...2 Recommendations4 Comments -
This mornin my best friend (and high school crush) was in court for a 2nd chance at proving his innocense. He wasn't all smiling and laughing - he wants OUT and so do I. It hurt so bad to see him in ankle chains. We blew kisses. His mother, daughter and granddaughter & I went to support him. He's been in 14 years! The "snitch" who got a lower jail sentence for talking up my ...1 Recommendation2 Comments
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I know, something positive after all the negative? Mind boggling but it's true. Tom has not reacted badly to the Dex this time, at least not yet. He seems to have more mental energy than he does physical. His platelets dropped to 93,000 from 260,00 before but yet he's in good spirits.
While I still feel overwhelmed trying to take up slack and keep up on school, he's been fighting and t...1 Recommendation2 Comments
