What is Multiple-Myeloma

Multiple myeloma (also known as MM, myeloma, plasma cell myeloma, or as Kahler's disease after Otto Kahler) is a type of cancer of plasma cells, immune system cells in bone marrow ...

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Monday November 30, 2009

Frustrating Stories

  • Thursday, February 28, 2008

    Thursday, February 28, 2008 | A Frustrating story

    I am so pissed off at the moment.  We went to the hospital this morning to get these so called new drugs administered to Eric but befor we allowed them to do anything we made them sit daown with us and explain in detail WHAT, HOW, SIDE EFFECTS and all the other little nasties that go with it.  His oncologist told us that it was drugs just to help with his symptoms and to make him feel b...

    1 Recommendation

    5 Comments

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  • Still no internet!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

    Monday, March 31, 2008 | A Frustrating story

    Hi everyone,
    just a quick update as I am using a friends computer because we still have not had our internet connected.  How frustrating is that??????????
    We had an oncologist visit yesterday and Sharryn came with us and really went to town on him.  Did not think she could be such a little tiger.  Anyway all his levels are now very high and the stupid doctor is now going to give him ...

    1 Recommendation

    5 Comments

  • frustrating

    Friday, May 2, 2008 | A Frustrating story

    Hello
    Am havent been here in quit awhile now this Monday I do my second Bone Marrow biobsy to see if My Myeloma ha progress like my Oncologist thinks he want to start me on medication I have lost some weight my diseaes are active I just want to say Hi to my friends well take care
    mill

    1 Recommendation

    3 Comments

  • The Enemy

    Sunday, May 4, 2008 | A Frustrating story

                           The Enemy
    I am standing in the kitchen cooking supper, everything is almost ready, when out of no-where, I feel a numbing, tingling sensation on the left side of my head. I stop dead in my tracks, thinking, Please, go away!It was to late, without a warning, my worst ...

    1 Recommendation

    3 Comments

  • pain

    Thursday, January 29, 2009 | A Frustrating story

    I will be starting my 3rd month of revlimid on Saturday.  My doctor seems to be confused as to why I am still having so much pain in my ribs.  I have to keep getting refills on the pain medication and both times I have called in his nurse has said you have used that many since we refilled it the last time?   I am not sure what she wants me to say.  Does she think I am pas...

    1 Recommendation

    3 Comments

  • Journal Entry for March 31, 2009

    Tuesday, March 31, 2009 | A Frustrating story

    Well , these last few weeks have been pretty rough, and they don't seem to be getting much better.
    First , I went to DS and it usually takes me straight to my profile page but that day it asked me to log in and my password... OMG, I joined DS in Feb. 2007, first thing that hit me was that I had a different e-mail address now than I had when I joined and had never changed it, and my password? L...

    1 Recommendation

    4 Comments

  • UGH!

    Saturday, August 1, 2009 | A Frustrating story

    What the hell? Now, I've hit my wit's end. Tom has pushed me all day with his constant egging me on. No matter how nice I've been, no matter the subject, he's been at me all day about how I don't care about him and how I'VE changed. What the....? I finally lost my temper with him and told him to just get bent. I have avoided talking to him or even being in the same room wi...

    1 Recommendation

    2 Comments

  • Mystery side effects-no answers

    Thursday, August 20, 2009 | A Frustrating story

    Thanks to everyone in my support group. I just wish I were giving as much as I am taking.
    That being said, Tom has developed another side effect to all the rest but the dr doesn't seem to be too concerned. He has developed uncontrollable tics. He will zig when he should zag and it's really frustrating him. I have nothing to offer to this as I haven't found any info because I've bee...

    1 Recommendation

    4 Comments

  • Emotional realizations-Tom

    Tuesday, August 25, 2009 | A Frustrating story

    Okay, now Tommy is going thru some bad emotional issues. He has, to my surprise, not accepted he is sick. Now he is having the neuropathy, easy bruising, and serious fatigue and it's like a slap in the face for him. I'm not sure what to say or if I'm saying the right things at all. I feel so aweful for him, he is not the crying type but he was crying tonight. He seems to me to be stru...

    1 Recommendation

    2 Comments

  • Keepin on keepin' on....the challenge

    Sunday, October 4, 2009 | A Frustrating story

    Yeah, doing the best we both can, just keepin' on keepin' on.
    Not as easy as it sounds, so I've discovered. Right now, Toms' platelets dropped down to 95,000 from 260,000 and dropping, so now with that in combination with the Dex side effects...well, and my womanly 'issues'... you can guess where I went last night.
    I, too, am trying to deal with Tom's issues, my school,...

    1 Recommendation

    2 Comments


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