Morgellons Disease Support Group

hey my morgellons...man can i relate to what you have just said,i myself live in australia,and have now had this condition going on my third year..I have found it nothing but frustrating to deal with doctors,dermatologists anddoctors involved with infectious diseases.i have had autopsys,with no results,for starters they are not trained in what to look for,i myself invested in a microscope and i carnt believe what i see,how come they carnt,in skin sections i have pulled out and seen black fibres and clear tubes entwined in each other,i have also seen fresh ones move..I also have these lavae type tubes that i pull out,these have been sent to pathologists to no avail...this is more than a battle fo us to regain our health,we all feel we are fighting a ignorant medical system. i myself are frantic as i have children ...and friends and family....since having this condition i have managed to contact and talk with others with this condition,i have also contributed to an article in the australian rolling stones magazine and have also been contacted by 60 minutes....hopefully i will get to tell my story,and the plight of many others..keep on keeping on,is all i can say,us morgys have to stick together on this.my thoughts are with us all...

I CAN TOTALLY IDENTIFY WITH WHAT YOU ARE SAYING. I MYSELF AM DISAPPOINTED THAT THOUSANDS HAVE IT, AND I HAVEN'T HEARD OF SOME KIND OF MOVEMENT. I WONDERED WHY SO MANY ARE SITTING IN SILENCE AND NOT SPEAKING OUT OR STANDING UP IN SOME WAY. MYSELF, I PLAN TO START A MOVEMENT AND PROTEST, AND DEFINITELY START SUPPORT GROUPS. I REMEMBER WHEN I FOUND OUT I WAS INFECTED WITH THIS I READ AND READ AND READ. IT'S FRUSTRATING TRYING TO EDUCATE YOURSELF ABOUT SOMETHING YOU'VE NEVER HEARD OF, AND AFTER GIVING UP ON GOING TO DOCTORS, THAT FELLOW MORGIES DON'T DO ANYTHING BECAUSE THEY ARE TOO DEPRESSED AND LACK MOTIVATION THAT WE HAD BEFORE. I FEEL THIS DISEASE WAS TO ATTACK YOU FIRST PSYCHOLOGICALLY WITH DEPRESSION, LEADING TO OTHER SYMPTOMS IN DIFFERENT SYSTEMS SO THAT YOU CAN'T CONNECT THEM TO BEING ONE SYSTEMIC DISEASE, AND WELL, AS YOU KNOW BY THE TIME MOST REALIZE WE ARE ALREADY IN THE LATE STAGES, WHICH ARE THE SKIN ISSUES, CRAWLING INCLUDED. FOR ME, AT THIS TIME I WAS SO SICK AND DEPRESSED, CONFUSED, BEAT DOWN AND HUMILIATED, FROM DOCTORS TELLING ME IT WAS ALL IN MY HEAD, THE NEGATIVE THINKING GREW LIKE AN AVALANCHE.
i HAVE HAD BP OF 159/100 AND MY DOCTOR NEVER PUT ME ON ANY KIND OF BETA BLOCKER OR ACE INHIBITOR. I RAN MY FINGERS THROUGH MY HAIR AND SO MUCH FELL OUT AND SHE ACTED AS THOUGH SHE DIDN'T EVEN SEE IT. I HAVE KNOTS IN MY ABDOMEN AND NO CT SCAN WAS ORDERED. THE DOCTORS AT THE ER TREAT ME LIKE A DRUG SEEKER WHICH PISSED ME OFF TO THE POINT THAT I JUST WALKED OUT IN PAIN TO PROVE MY POINT THAT I WAS NOT A DRUG SEEKER.
I AM SO ANGRY I DEFINITELY AM GOING TO TRY AS HARD AS I CAN TO GET MORGELLONS TO BECOME A DINNER CONVERSATION IN MOST HOMES AT SOME POINT. IT'S A TALL ORDER,BUT I THINK OF THE CHILDREN, BABIES, TEENAGERS, HOMELESS AND ELDERLY THAT DO NOT HAVE ANYONE TO STAND UP FOR THEM ESPECIALLY THE BABIES WHO CANNOT EXPRESS HOW THEY FEEL. IF WE CAN HARDLY TOLERATE IT BEING ADULTS IMAGINE WHAT THEY FEEL? AS IT IS, TEENAGERS GO THROUGH IDENTITY VS ROLE CONFUSION, IN ADDITION TO THE RAGING HORMONES AND THE ADDED NIGHTMARE OF MORGELLONS MUST BE SO CONFUSING TO THEM. I AM DISGUSTED WITH OUR SYSTEM AT ALL POINTS. I AGREE SOMETHING MUST BE DONE. IT WOULD BE NICE FOR THE PERSON WHO IS SUPPOSED TO BE PRESIDENT LIT A FIRE UNDER THE CDC'S ASS, BUT OF COURSE THAT WON'T HAPPEN UNTIL SOMEONE "IMPORTANT" IS INFECTED.
WOW THAT FELT GOOD - IT WAS TIME FOR A VENT, NOW BACK TO WORK. TAKE CARE....
INMORGHELL