What is Morgellons Disease
Morgellons or Morgellons disease is a controversial name for an alleged polysymptomatic syndrome characterized by patients finding fibers on their skin, which they believe are rela...
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ANGRY AT THE WORLD
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I'M ANGRY, SO ANGRY AND FED UP. THIS DISEASE HAS RUINED MY LIFE! I'M TIRED OF WAITING FOR THE USELESS CDC TO PUT OUT THEIR RESULTS FOR MORGELLONS. I'M SICK OF DOCTOR AFTER DOCTOR INORING MY SYMPTOMS. I HAVE HIGH BLOOD PRESSURE, THEY DIDN'T TREAT ME FOR. I HAVE A KNOT IN MY STOMACH THAT IS PAINFUL WHEN I WALK. DID THEY BOTHER TO SEND ME FOR A CAT SCAN - NO! WHEN THEY TOLD ME THE THINGS COMING OUT OF THE POCKETS OF SWELLING WAS KERATIN, I ASKED IF ASKED IF IT CAUSED SWELLING, SHE SAID NO BUT DIDN'T EVEN BOTHER TO LOOK INTO IT. NOW MY KIDNEYS ARE LEAKING PROTEIN AFTER MONTHS OF TELLING DOCS OF LOWER BACK, ABDOMINAL AND HIP PAIN, COUNTLESS UTI'S KIDNEY INFECTIONS, AND KIDNEY STONES. NOW MY 14 YEAR OLD HAS IT. MOSTLY I'M PISSED ABOUT THE BABIES(BOTH BORN AND UNBORN), CHILDREN, AND TEENAGERS THAT ARE TOO YOUNG FOR THIS DISGUSTING ABOMINATION. IF ADULTS LIKE US HAVE A HARD TIME COPING, I CAN'T IMAGINE BEING AN INFANT OR TODDLER AND NOT BEING ABLE TO EXPRESS OR UNDERSTAND WHAT IS WRONG. I AM DISGUSTED AND I CANNOT COPE ANYMORE. MY HAIR IS FALLING OUT, MY TOENAILS, KIDNEY PROBLEMS, 5 DAYS WITH A HEADACHE, AND MENTAL ANGUISH ARE WAY TOO MUCH TO BEAR. WHAT IS IT GOING TOT TAKE FOR SOMEONE TO WAKE THE F*&K UP AND HELP US?!?!? OH, MY MEMORY MUST BE GOING BECAUSE I FORGOT THAT THEY JUST DON'T CARE. IF THIS CAN HAPPEN TO ME IT CAN HAPPEN TO ANYONE, I'M SOMEONES CHILD, WIFE, MOTHER, FRIEND, NEIGHBOR JUST LIKE EVERYONE ELSE. SO ALL THE PEOPLE WHO HAVE A CHANCE TO HELP BUT CHOOSE NOT TOO, GOVERNMENT AND DOCTORS ALIKE, YOU'LL BELIEVE IT WHEN IT HAPPENS TO YOU OR SOMEONE IN YOUR FAMILY. UNTIL THEN THANKS ALOT FOR NOTHING WHILE THOUSANDS SUFFER WHILE THOUSANDS MORE ARE INFECTED EVERYDAY. IT'S A DAMN SHAME WHEN YOU HAVE TO RELY ON YOURSELF FOR TREATMENT JUST TO FEEL HALFWAY NORMAL, NOT EVEN A CURE. I KEEP THIS ALL IN BUT I'M TIRED OF WHAT OTHERS THINK, THIS IS HOW I FEEL AND I'D RATHER DIE BEING ASSUMED CRAZY, RATHER THAN FEEL LIKE A COWARD FOR BEING AFRAID TO SPEAK UP FOR THAT SAME REASON.
Posted on 08/30/09, 01:08 pm |
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Hi, I am also 36 years old and a Mom and I feel a lot of the same stuff you feel. WE are young and it's isn't fair and I am so sorry your 14 year old has it now. I am so afraid for my 16 and 19 year old kids. I have had this over a year now and it is so scary. My husband has it too. I cried all day yesterday because enough is enough. I want my old life back. I want my kids to live with me again and to be a Mom(I know I still am one but I don't feel like it when I don't get to see them very much) and I want my pets back- I had to get rid of my cats that I had 9 years. We were infested with bird mites before morgellons and my cats kept getting infested too. It is unfair- I agree. I want to hug my daughter, she is so afraid and hasn't hugged me in 16 months and is moving out of state next month- my heart is breaking. My doctor was honest and said he believes me but he is unwilling to try to help me because he does not know how to treat. I am sure if it was his Mom or sister he would feel differently. I wanted to say that to him but to be honest I was glad he believes me. I am proud of you for speaking the truth and getting that out. And I don't judge you one bit- you are brave and strong and that is great to say how you feel. Just know that everything happens for a reason, I don't understand what the reason is but it is true. And God loves you- these 2 truths is what I have been holding onto. I understand being mad at God though, I have been there many times, even yesterday I felt abandoned and angry at God. I will pray for you and for a miracle for all morgellons patients. I believe there will be. Please try not to lose hope, without hope you have nothing. You are a fighter, this I can tell. Keep up the fight and the faith. Kim 
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I was so angry like you because my doctors would not help me.
Mine told me I was just depressed. Go figure, almost in a wheelchair and that is all they could find. You need to find a Lyme literate doctor who can help you. Even if you do not have lyme they know how to help with this disease as no one else does not even try. Lymenet.org has a page for seeking LLMD in XXXX town and state. They will help you find help. See Flash discussion and post in seeking doctor. While most have a 4 month wait right now you can read what others are doing to help and many same as here. If you get a response from some of the home tried treatments there is a good chance you have other infections that have been missed.
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Thanks for the info- I can't seem to find how to put my town and state in to find a doctor. I tried to join but I keep messing it up. Can you help me? I live in Bloomington/Normal Illinois.
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