Migraine Headaches Support Group

Hello Everyone!

I have been suffering from migraines since I was 15, after a traumatic brain injury incident. I had a handful of severe migraines as a child but after the accident I was in constant pain. Two years later a doctor took pity on me (I could not function from the migraines) and prescribed me fiorciet and Bextra. Long story short it treated my migraines really well – I had to switch to Mobic after Bextra got pulled off the market. I only had to use my meds for about a week or so out of the month to stop the migraines and some months I didn’t have migraines. Lately, my migraines have changed and start in a new area and I’ve had this migraine for a month now. I have been hospitalized twice and that did not help at all. The first time I was given Dilaudid, which only knocked it down a few pegs and the second time I was given Toradol, Compazine, and Benadryl which was very effective but I could not replicate the effect at home. I saw a neurologist, who put me on Verapamil SA and gave me Cafergot for abortive medication and told me not to use my old meds – which I understand. Well three weeks into the treatment the Verapamil gave me very undesirable side effects and the Cafergot has done nothing. I called his office and he told me that the FDA listed side effects were BS and that Verapamil could not cause any of those side effects. I am really upset, and I would like to know if any of you have had the same thing happen, what do you do now – do you go look for another doctor? Or do you try to talk to this one? This doc said if my migraine got really bad they have Demerol in office and to come in for an injection – but I don’t want a shot I want long term fixing of this. I mean, what happens when the Demerol wears off – I’m at home with nothing – I didn’t think that sounded like a well thought out plan? I cannot take anything in the relpax family due to it not working, and it reacted adversely with my heart’s ability to function. The usual long term drugs, I have been on and have all affected me badly. I was on seizure medication for the TBI, I know that most of them either cause uncontrolled depression. I was on Depakote, Depakene, Dilantin, Topamax, to list a few. I was also on a lot of Antidepressants, and drugs of those family’s due to the fact the TBI was misdiagnosed at first. I walk into a doctor’s office and feel like I’m the walking nightmare because most things do not work for me and of course they make me feel like a leper because of that fact. Does anyone have a positive experience with the doctors? Am I seeing the wrong doctors or are most like the neurologist I am seeing?


Thanks everyone
Posted on 10/04/09, 09:10 am