What is Meningitis
Meningitis is inflammation of the membranes (meninges) covering the brain and the spinal cord. Although the most common causes are infection (bacterial, viral, fungal or parasitic)...
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Recurrent Viral Meningitis
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Hi all -
I have Mollaret Syndrome, which is a recurrent viral meningities. I've had 3 episodes in 6 years. There's not a lot of information out there about this subject. Does anyone know more about it? Know of a specialist who deals specifically with this? Every time it happens, I wind up in the hospital for at least a week. It is EXTREMELY painful and debilitating. The worst part is that it could happen again at any time. It could be weeks... months... years... or (hopefully) never. I want to do everything in my power to make sure it never happens again, but it seems like my options are limited. I tried prophalactic Valtrex, but that started affecting my liver so I had to discontinue daily doses. I'm now on an IV of acyclovir at home and will be disconnected this Friday, after more than 2 weeks of treatment. Any one else out there share this experience? Know of new treatments? Anything? Posted on 09/11/07, 12:09 pm |
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I am so sorry to hear this! And somewhat terrified-
I hope you are doing well now and recover completely. 
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Wow! I had never heard of this syndrome before. Do you get cold sores? My BF has cold sores, but I never got them, but do get viral meningitis more often than is expected. I don't think the doctors ever did a PCR on my CSF. Do you get this every year? Are there any other symptoms to watch for?
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Hi, new to this, but I was wondering what has come of your treatments? I share your pain in this since I was 7years old to this day at age 28. would like to swap stories & hopefully help eachother in the process. thanks
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Hi I also have Mollaret Syndrome. I have had Meningitis over 20 times. It started when I was 18 and now I am 42. When the attack hits I start right on my acyclovir and also take imitrex. I have never met anyone with the same problem as me. I wouldn't wish this upon anyone.I've had it twice this year already! It seems to come out when I'm rundown. Does this happen to you? By the way, Imitrex really doesn't work. Do you take anything for pain?
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