Meniere's Disease Support Group

This past January I was diagnosed with Mennieres syndrome. I didnt have the fogginess but had lightheadness with strong ringing to both ears. My general practitioner was of no help so I seeked out ENT specialist. Two werent of much help but the third made a big differance for me. I had many test run and then was put on steroids for a month which brought the symptoms down about 60%. He then put me on Topamax and this made another 20% change. Unfortunately I hit a plateau and there was nothing more he can do. At this point I was only suffering tinnitus. I began to feel depressed about this when I read that someone with the same problem sought help with accupuncture and it really made a differance. I am now into my fourth week of accupuncture and it has really brought down the volume to my ringing. It would fluctuate here and there at first which was alarming to me but it was explained to me that it was normal until treatment settled. The ringing is still there and I am still going for therapy but there are times when I can barely hear it. Now Im about to begin a homeopathic remedy. I was told by someone who had this that the homeopathic remedy healed him 100% where modern medicine failed.
I hope this is helpful to you.

Thanks Maipen for the reply.
Can you tell me which Homeopathic rememdy you are going to be using? Is it just to stop the Tinitus?

thank you

Hello,
I have Bi-Lateral Meniere's which was brought on by another condition called Chiari 1 Malformation.. I was DX August 2008 when I demanded an ENT referral after I started having all kinds of werid symptoms along with the ringing ears the ENT DR ordered a Brain MRI if it had not been for him. I would still have DR'S thinking I was crazy. . From the onset to being DX with these 2 condition it was 4 months during that time I lost a large portion of my hearing in both ears and now wear aids.

Have you had a brain MRI by chance? Looking forward to hearing from you.

Hugs,Jacki

Hi Aremerald,
I havent had a brain MRI, but I did have a CT Scan which came up normal. Ive also had lots of blood work done which came back fine as well.
At this point I believe this Fog is due to having Menieres Disease, and now looking into finding what triggers it for me and if theres any remedies out there to lift it when it does occur.

thanks so much for the reply ...

hi maipen,
i generally have brain fog and a bit of stuttering ater an attack.about two weeks can't think staight and can't think of words sometimes.i go back to normal after that.

Hello,

I have Meniere's Disease and Fibromyalgia. The brain fog you describe sounds like 'fibro fog' which is common to fibromyalgia. I have often wondered about the connection to these two illnesses, as the symptoms seem to overlap and I wonder if it is not part of one whole syndrome. Have you ever been seen to rule out Fibromyalgia by a pain management doctor? I suggest you might go that route if you have not. Good luck!

Brain fog is definitely one of the joys that can come along with Meniere's. Mine occurs and lingers if I have a really bad bout of vertigo. I make no sense, I can't concentrate or do much at all really. Haven't found a way to shake that one, but thankfully my attacks have truly become less and less frequent.

I find that "Brain Fog" is all I ever really get. I dont ever get vertigo attacks or Tinnitus. Just one day out of the blue I will get foggy and it will last as long as it wants. I do find that if I eat stuff that has alot of (bad) sodium or MSG it gets mich worse...so I dont eat stuff like that anymore. I guess sometimes I do get the heavy feeling in one ear but never any vertigo attacks, just always get brain fog. It's tough to live with when it comes but I guess theres nothing that can be done. Sometimes I think my working out and Kickboxing helps out a bit, I hope it keeps it bay but even that cant stop it 100%.

thank so much for all the replies!

OMG!!! Thank yo so much for your post!! The foggyness oh yes i remember, i had that for about 3 years, my doctor said he never heard of it! I am so thankful someone else knows what im talking aobut !!

I have read a lot of people with Meniere's complain of "brain fog" although it is not one of the standard symptoms (hearing loss, tinnitus, vertigo, and fullness in the ear). I have had Meniere's for about 9 years (I've had all those four symptoms) and I don't experience the fogginess myself. My ENT once told me that some people can have migraines whose main symptom is vertigo, I could imagine how brain fog could be associated with that because migraines are involved with the brain, whereas Meniere's is mainly involved with the ear. So, not sure if it is strictly from Meniere's, but could be from something that often comes along with it. The thing is, Meniere's is not that well-defined itself, being diagnosed through symptoms and the elimination of other possible conditions, rather than being totally understood from a mechanistic point of view. So sometimes it is unclear what symptoms are really part of it... but like I said it is common for some Meniere's sufferers to report brain fog. Still, if it was me I would try to keep looking for other potential causes, just in case.