Medical Mysteries Support Group

I was told I had stress so many times..That when I heard the word I would go into one lol where before I was a chilled out person..Hence the sit in at the doctors...Im glad I did that I was angry at first but because the conditon is silent and sneaky similar to what you have put which the thing is so many things are.. mines alot of conditons mixed into one I guess but I have a couple of things the specalist saw which caught the sneaky assed thing out..My advice is write everything down smallest of things it was the silliest one that got it...JJ

This is my list...First burning inside hard to explain but an intense inward heat..told menopause lol..Then came the carpel tunnel alot of people have this got told..Needing to go to the loo had pain in lower back again age for this..I had an acne rash on the side of my face first told its some reation to drugs or can happen..Good if I was on any drugs but was not I was using the creams my teenagers bought thats bizzare thirty and using my teenagers creams and spot lotions they cracked up laughing it then spread across my back and shoulders..Told try a sunbed by a beauty parlour.. tireness it not like normal tireness its different I now can see the difference but my body constanly ached ..Again stress was told..Weight gain age was told..Vision would think for my right eye there was a shadow as if someone was standing there but when looked nobody was blurry vision couldnt stand bright lights...That was some of the early stadges then I was going into second stadge...heart bloodpressure memory couldnt think straight had a kind of fog a brain fog..looking in the mirror this grey person was starring back lost my bright eyes they looked dull..I was lucky I didnt have the headaches alot do my nails grew so fast people said youre lucky people pay a fortune for nails like that...I use to fly off the handle so easily from someone so easy going I turned into a shouting tazmania devil lol oh boy some people got it but I think it was down to nobody listening and saying stress and I wanted to smack someone.Emotions got mixed up I couldnt do emotions very well cried to easily laughed at sad things that got me into trouble a few times.The one that gave the sneaky assed conditon away acromonster I call it was my feet changed size I did laugh because I did once do alot of keepfit before it took its grip I thought my feet changing size was down to yoga but I didnt know ring side had to take off wedding ring..My bloodpressure they did check it and it lead them on a dance but it was the feet size changing that got the ass..I have a tumour on my pit is common as in conditons for adrenal glands for prolactinoma cushings etc I have the rarest conditon trust me lol..I would do a ruling out for hormone disorders maybe just need to see a hormone specalist some people say an Encro but the hormone specalist he was more aware..It was a case of a simple blood test then a glucose test then an MRI.. eyespecalist usually can spot tumours but they didnt for myself and it was large..appearence although didnt get me is one indication and spacing of teeth although I didnt..I had mine five years silently five years then trying to tell people I had something wrong its a long time so I feel for you whatever it is its a relief when someone puts a hand on your shoulder and then says I believe you I hope soon its found whatever it is you have all the best JJ

JokeyJ,

Thank you so much for your replies. I really appreciate your time and effort.

I especially like your last sentence about someone putting a hand on my shoulder and telling me they believe me. I would give ANYTHING just to know!! Of course, then I would want to be cured or treated. But, just knowing would be a HUGE relief!

Thanks again and best wishes to you.

I hope someone puts a hand on your shoulder and helps ...:) keep being your advocate ridethewaves

jokey j,

thanks again. much appreciated.