Medical Mysteries Support Group

The Doctors don't know what I have yet. They are still doing tests. I went from working full time and going to the gym 5 days a week to not working and using a cane in 2002. Through the years the pain in my legs and arms and all over have gotten worse. The main part of the pain is in my legs.

I was diagnosed with Fibromyalgia but now this is secondary to whatever else is going on. I believe I was misdiagnosed with Fibro to begin with. They have ruled out Lupus.

I have flu like symptoms, aches in hands, wrists fingers, fever off and on during the day up to 103 F a few times 104 F.

I have high white blood cell count, anemia off and on and high SED rate or high inflammation. They may look at Multiple Sclerosis or Muscular Dystrophy.

My family history, diabetes on both sides but I don't have it, knock on wood. My father had a stroke but is still living. My Mom died of cancer. My aunt died of Lupus but she never showed with a Ana count until the day she died but they did say she had systemic Lupus. My Grandmothers cousin also had Systemic Lupus and died at age 28.

I'm not sure what I have but I hope they find out soon. Sometimes the pain is unbearable. Today is the first day in months that I have had some relief from the pain. I am still in pain when I walk but I would give today on a scale of 1-10 with 10 being the worst pain a 5 in the legs when usually I say it's a 12.

I read another posters blog about how her brother died of chronic leg pain and they never did find out what was wrong with him. I hope they find out for me before it's too late.

My first symptoms were dizziness at work, extreme fatigue, migraines, nausia, and this all worsened after I had my appendix and gall bladder removed in a 3 month period of time. I had been experiencing these symptoms before the surgery but they increased after surgery.
Posted on 06/15/09, 01:06 am