What is Marfan Syndrome
Marfan syndrome is a connective tissue disorder characterized by unusually long limbs. The disease also affects other bodily structures — including the lungs, eyes, heart and blood...
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Hey sorry this is a downer kindof message but Im looking for a little advice. Ive never been diagnoised with marfans but my mom has so that put me at a 50/50 risk however I have a dislocated lens and 2 or 3 other little tells so I figure ive got to face it. i have no insurance and dont plan toget myself diagnoised anytime soon. The advice im looking for is I dont talk to anyone about it I dont want to bring my husband down or mom or anyone else. where do you turn who gives u advice ect....
Posted on 09/08/09, 01:09 pm |
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