What is Marfan Syndrome

Marfan syndrome is a connective tissue disorder characterized by unusually long limbs. The disease also affects other bodily structures — including the lungs, eyes, heart and blood...

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Dysautonomia
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Does anyone have Dysautonomia with their EDS/Marfan or any other connective tissue disorder?

I fit the bill to a T and was just wondering if anyone has trouble with balance, heart palps, headaches, flushing, urinary problems, etc.

I know this goes along with EDS and Marfan but they don't yet know why. I can't understand why they don't since these affect your nervous system in some way.

Has anyone gotten help for this and if so, how? I am currently on Lopressor (Metatoporol) f or my heart/blood pressure. Any other meds that can help out?

Thanks!


Jenny
Posted on 08/07/09, 09:08 pm
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Reply #1 - 08/08/09  9:35pm
" I do not know what dysautonomia means. I'll look it up and get back to you.

I have bi-lateral Meniere's Disease and cerebellar brain damage, in addition to Marfan. I have always attributed my collapsing to the first two, and never guessed that Marfan could play a part. Live and learn. "
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