If I'm understanding this right. It sounds like your boyfriend knows he has marfans cause he says he doesnt want any genetic children and he doesnt think you know he has it?. Marfans is still really new to me. My son is the same way although my sons chest is sunken in and he hasconstant pain in his legs, arms, back, and joints. It sounds like your boyfriend is a great man and you care for him deeply, you should say something to him. Do you know if he is seeing a Doctor who specializes in Marfans? Relationships are tough when trying to give advice for fear they might not want you to know. If your in a strong relationship I would say to talk with him about this. Marfans effects the heart, eyes to name a few big conditions as you probrably allready know since you know a family with marfans. Let him know how deeply you feel and you want him to be around for a long, long time. Iike I said I'm new to Marfans and I'm
learning a lot as I go with my son(14yrs) and he's 6'3. I am also noticing other family members that have the same trait. This is just my advice so take it for what its worth. Only you can make that choice. I wish you the best. Let me know how things go...Take care...Staci
