What is MCTD
Mixed connective tissue disease (MCTD) or Sharp's syndrome is a human autoimmune disease in which the immune system attacks the body. MCTD combines features of polymyositis, system...
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roll call oct 29th to nov 5th
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Hi everyone. Just got over a few days of really bad pain so happy its back to manageable. Supposed to see rhuemy sometime early nov but have not heard from her. Really didn't feel like going anyway as nothing ever gets changed. 5 minutes and some blood work Guess you could say I am discouraged with the care I get. It costs so much to travel that far and too painful to drive. I do get reimbursed in two months for a good part of it but that's hard when only on pension.. It is not Canadians health care its just the distance thing. I should have moved to a city when I could have afforded it. I may be trading my Chevy Malibu in as it is too painful to drive with those new fangled seats made for tiny butts. I know I will take a loss but can barely drive for pain in this one. Wish it was like the old Chevy Malibu's. Well hope all are in good as possible shape. hugs marilyn
Posted on 10/29/09, 11:10 am |
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awww hunnie sorry you had to suffer so much pain :( please get feeling better soon....how far of a drive is it for you? is there ay possibility of getting labs done in your town and having them relayed to your rhuemy? then if she sees the lab results and there is no change in things maybe you wont need to go there as often....just a suggestion....I too have financial constraints so I avoid going to too many appointments and try to fit the specialist and my regular GP on the same day fairly close together....but mine are both in town....it was worse when the only Rheumy was in Wpg cause for me that was a 2.5hr drive to get there and another .5hr just finding a freakin parking space!!! Now I cant even drive anymore...cant afford a car never mind the upkeep of the stewpit thing!!!
Keep smiling chicklet!! ~Donna 
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Sorry to hear that you're not feeling well too. My pains are getting worse lately. It's happening in the mornings now at night and i can't sleep anymore.
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Hi everyone, sorry i don't have much to say to cheer you all up....i am struggling lately. If its not physical pain, its depression or breathing problems etc. I am still struggling with my breathing and this illness and all its symptoms and problems is just getting me down. I have a hallowean party to go to and then out to a friends for a meal. All i want to do it stay in...on my own, but feel bad for letting them down.
I am also dreading christmas because of the planning, and being sociable. Maybe things will get better, but recently i am just tired and cant be bothered with anything much. take care, and keep hoping things will get better Hugs x
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Hey Jac...sorry that youre not doing so good these days...I guess that pressure of what others need is always more of a priority than our own health...it makes me feel obligated too...however, knowing that I have to keep my health i check has forced me to say NO more often...yes the friends have dwindled down to just a select few and the family members have not been very supportive either but the end result is still the same...I have SLE/MCTD...they do not...so it is very difficult for them to understand but they will some day...try to stay positive and only do what you feel up to...& to heck with christmas planning & socializing...suggest a buffet style/potluck party instead of planning & prepping the whole thing yourself
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Hi donna, thanks for your message. Your right, i will have to say no more often. I must admit i find it diffecult.....also find it hard to say how bad i am feeling. For some strange reason, it seems people think i am some kind of superwoman and come to me asking for help all the time. maybe its because i'm not working and they think i am a lady of leisure?? Sometimes it all gets too much.
Why does saying no make me feel so guilty? If people say no to me i take it as normal business, tiredness etc.....one day i will learn. I hope your doing alright. Hugs x
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**HUGS**
To all sounds like that as winter approaches we are all going down hill faster than we want. How to cheer us up........................................ well xmas will soon be here that means that summer is not that far off ;p. no sorry thats all I can think about. So I will tell you some news instead. Just drove up to my Mums approxx 170miles for a surprise 65th dinner. did that sunday drove back today. Even manage to get my daughter to go she 21. She enjoyed it and well worth the pain and discomfort.Still managing swimming though its down to 20lengths thats 1/2km. Daughter has two job interviews Tuesday only xmas p/t temps, but as she is moving to Outskirts of London she needs work. well thats all folks for now Chin up - stiff upper lip and all that jazz Hugs Debbie/ Tiggy
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Jaquelin, this is my first Christmas with mctd and I always throw a huge party with my hiking group, don't know how many trees I'll get decorated, but it will be potluck with dishes assigned and having everyone bring their own drinks. Plastic cups instead of wine glasses, just hope I'll be having one of those good days. Feel Better
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