Lymphedema Support Group

I was diagnosed when I was 17.

Hi

I was diagonosed when i was 16. Now i am 30, i would like to have a child one day but it scares me so much. The swelling started with my right foot and now both my feet and legs are swollen, the swelling is more pronounced on the left leg. I have recently started going for Manual Lymp drainage (MLD), it is quite expensive so i only go once a week .
I dont wear compression stockings at the moment. I used to wear sometime ago but they hurt so much, now i have had new measurements taken.

this lymphedema thing is food related, we are living in a chemical world where everything is antibiotic and hormons and additives, so when somebodies lymphatic get congested , they say youre born without lymphatic vessels, that's what they told me 18 years ago. now it's been 2 months that I don't put in my mouth animal products and everything white, both of my feet are normal.I do dry brushing too every day for 30 min. since 8 months. so you judge.

I was diagnosed at 4 years old.

Sorry Toto33 that is not true in every case. You shouldn't be telling people that. There are different causes of Lymphedema. Mine they did and test and showed me I am missing all my lymph vessels on my left side.

cheshir 28.
sorry to hear that, but mine they are missing on both sides. left leg and right leg.
and with proper diet, youre body is able to function without them. Like my body is doing now. but it takes time. nobody is believing me. it took me 9 months to see results. but most of the people ,they want to see results in one week. but inside your legs there is lymph, and lymph moves very slowly.

I want to eplain to everybody something very important that a naturopath eplained it to me.
our body is 75% lymph, most medical doctors don't eplaine it to patients cause they don't even know it.
every time you give your body refined flower, refined sugar, animal meat, dairy products and the list goes on...., your lymph gets thicker and thicker, and can not flow easily.
another thing, the kidneys, the liver, the skin, the appendix, are the governments of the lymph system.
the lymph vessels are very tiny, the tests that they do to see if the lymphatics are congested are not reliable because the lymph vessels can only be seen under the microscope ONLY.
we, humans we are fruitavores and not carnivores, so in order to clean up your lymph system you have to eat only and only fruits, specialy lemons, oranges, melons etc..
and the lymph glands are the toilet of the lymph vessels, so you can clean the toilet if it is congested just like the toilet at your house.all the products in the market are man made. stop that first, eat few days only fruits, dery brush your skin, trust me you are going to see tremendous results.
I know a little girl 6 years old, she has the milroy's syndrom, I am treating her with fruits, and she is responding pretty well actually, it's been 2 months, and her legs are 50% less in size now. and I am going to continue educate her so that she will be better soon.

@Toto33 if you are missing ALL of them then you body can't function just be diet alone. It would be physically impossible for the body to push the lymph fluid back up if there is no vessels to bring it back out of the limb without compression pushing it back up.

Now if there is a blockage or only some of the lymph system missing then maybe that would work. That will not work for everybody. I am happy it worked for you, but it will not work in all cases. (not trying to sound mean sometimes I know its hard to tell on here. ) If you weren't diagnosed until 17 you most likely have some lymph vessels or you would have swelled sooner. Have you had the lymphography? That would show what vessels are missing. If you have some of them then diet might help you to not overload your remaining vessels.

I have had primary lymphoedma for over 40yrs in my ankles and which travels up the legs as the day goes on.

I have compression stockings which I wear when travelling and when walking. I find resting daily with my legs elevated helps reduce the swelling and the pain which I get underneath the arch of the foot due to the pressure.

What I do get is a feeling of flu symptoms aching feet, legs, shoulder and going hot and cold so I must keep warm.

I have had cellulitis 5 times so I make sure I get plenty of rest with my legs elevated to keep the swelling at a minimum.

I eat lots of fruit and veg. and exercise daily to help my circulation.

There is no cure but we have to do what is best for ourselves to make life easier for us.

I have primary Lymphedema in my left leg now. It was caused by a small burn on my leg three years ago. My theraphist believe my lymph sysytem wasn't completey formed when I was borm. I am struggling with this disorder alot. I need support friends. I would really like to find someone that I can talk to in person about primary lymphedema and is going through the same thing that I am going through. Let me know if there is anyone out there, is willing to talk in person to me. Thanks.