What is Lyme Disease
Lyme disease or Lyme borreliosis is the most common vector-borne disease in the Northern Hemisphere. Named after the town of Lyme, Connecticut, it is now one of the fastest growing...
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I would love to ask some questions and share a little about me. I have a great primary who did blood work. The lymes came back negative. So RA is the winner that fits the symptoms. The rhuemy's say I do not have RA. My symptoms started about 2 years ago. Went away for 2 years and now they are back. My knee swells, I have had problems this time round with muscels hurting and twitching. My hands, arms, and shoulders hurt. They even shake at the worse times. I am not sure if I have lymes. I do work in a place where there are loads of ticks. Finding them on me is normal. I would like to say the correct thing or go to the correct doctor to prove I have it or get it off the list of things and move on. I am bored, I can't do things I want to do, I am tired and achy all the time. If I try to work out there is a penalty of pain at that moment or later when I least expect it. Thanks!!!
Posted on 07/05/09, 02:07 pm |
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I had zero help with infectious disease. They told me that because i did not have swollen joints I was "not sick enough to have lyme". LLMD's have the biggest battles with ID docs,,,, I can't stress enough for the need for a LLMD.
also. my kids' pediatrician specializes in infectious disease. she dismissed me several times about concern of lyme with my son. Again, "no swollen joints, so no lyme". 2 months later he was diagnosed with lyme and is currently being treated. 6 months of wasted/untreated time went by/ I had to leave our state to get the diagnosis and treatment. 
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Thanks everyone. I have no idea if this is what I have. There are a couple of things that are just too similar. I hope to find out this week the results. I did find a doctor that is the llmd but is not close and I don't think insurance covers it. I will call them tomorrow and ask ask ask. Thanks
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You should be able to convince one of your regular doctors to at least request a Western Blot test for Lyme for you, which your insurance will then cover. Unless you already had one?
The other very good test for Lyme seems to be the CD57 test. If you score low on this it means your body is still actively fighting the Lyme bacteria. I had to pay for this one but it didn't cost that much, as I recall. I am personally starting to feel that it may be a better indicator than some of the Western Blots. If you have to wait a long time to see an LLMD (as I did) you might to try and get these tests run in the meantime.
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I should have said, I think the CD7 may be a better test for people who are still showing symptoms of the disease. If it's "hiding", then the CD57 won't tell you much.
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Forgotmath is right. My "regular" non-LLMD PCP ordered a Western Blot, at the request of a non-LLMD orthopedist! Many docs will at a minimum run the test. It came back negative the first time and then positive by my LLMD. The more you test for the WEstern Blot apparently, the more likely you are to be positive. On the other hand, it takes a while for the body to make the antibodies.
Good luck with all of this. It's not picnic -- this disease and it's not made easier with so very few doctors who take is serious and bother to learn how to treat it.
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I was going back in the R.A. archives and found this old thread about the difficulty of diagnosing R.A.:
http://www.dailystrength.org/c/Rhe... reply #8 is especially interesting/helpful. Good luck! Take all the doctors' advice and test results and go through whatever process works best for you to make sense of it all but please don't leave us wondering.
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