What is Lyme Disease
Lyme disease or Lyme borreliosis is the most common vector-borne disease in the Northern Hemisphere. Named after the town of Lyme, Connecticut, it is now one of the fastest growing...
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I posted the following in another lyme group, for any of you that make the same lyme circuits. Sorry for repeating myself!
My teenage daughter, who has been receiving treatment for lyme the past year, begged to go to a state-wide youth retreat nearby- that lasted almost a week. She had been too sick to attend last year. So, packed with medical releases and a backpack literally filled with meds (color-coded, etc.), we sent her on her way. Her herx came a bit early, it seems. She had difficulty walking most days while at the retreat, and various people carreied her, and one girl shared a crutch, when she could. She sometimes had to go back to her room to nap for a few hours. BUT, she had a great time, other than some excruciating pains, and is so VERY glad she went. On the last night, high school seniors could share their "faith stories" in front of the large group. A girl from a different part of the state talked of how difficult the past year has been for her. Her best friend's father commited suicide. He'd been sick with Lyme Disease for 15 years, and it returned. The speaker listed the man's various Lyme symptoms, which sounded all to familiar to my daughter. The past year and a half has been really difficult for my daughter, medically and emotionally (the rollercoaster of being a teen, isolated from peers while on homebound instruction, wanting to fit in, etc.). Hearing of this tragedy was very upsetting for her. Yet, in a strange way, I think it brought her validation- that maybe peers who don't "get" lyme might realize how horrible her ordeal has been. I'm not exactly sure why I'm posting this....It's all still "fresh," for she just came home today. What are the odds that this experience would happen at a retreat- in a state that supposedly does not have that many reported cases of Lyme ? How many deaths are directly or indirectly related to Lyme that we never hear of? I'm just pondering....Thank you for listening! Posted on 06/27/09, 10:06 am |
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I would say that the odds are very high that this WOULD happen in this environment!!!... miracles come in all shapes and sizes, and validation is a miracle we sometimes take for granted or fail to acknowledge. Your daughter and the support she received at the retreat (carrying her? sharing a crutch...? I am in tears almost) invited just such a miracle. I would say the odds of someone maybe MISSING the miracle might be pretty high, and maybe many did miss it.... but not your daughter, or the speaker, or those who care about her in that intimate group. I am wondering if your daughter and the speaker had opportunity to share following the group share? I think the speaker was very courageous, as is your daughter. I think... I wonder if... they need eachother? I think... I wonder if... they have been given to each other, if only for this one encounter? I love it when things like this happen.... thank you for sharing.... 
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It is scary because I have dealt with this disease for so many years and have lost my job and thank goodness my husband has stood by.
My daughter is 17 and has it from me while pregnant. She doesn't take her meds half of the time and I tell her that she will end up like me but I don't think it really registers. I mean she gets headaches from it and knee pain but for the most part is still very active . I feel for those young ones that has this disease. It is so horrible and most people have no clue what it is about. I know my family and friends have no idea how much I have struggled over the years and they just push it aside when in conversation. Like my sister -in- law said I think I got bit because I have been achy so the doctor is doing a titer test. Well I am glad but imagine me who has had it all my life and it didn't get caught in time. I get frustrated at people who think you take a months worth of antibiotics and your cured. Unfortuneately that is what the doctors have been told and tell people. I will keep your daughter in my prayers as for all of with this debilitating disease. One thing I know is that when I meet my maker I will have a new pain free body then!! I just have to do the best we can until then. God Bless and big hugs!
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Thanks, standstrong, and slrow, for your replies and kind words! Slrow, I know that must be difficult to watch your daughter not comply with taking her meds regularly- and being afraid she'll pay for it! I imgagine we might have that issue down the road....
I'm still processing all that my daughter shared about the retreat. It was so good for her, and all that transpired seemed almost...preordained? Or, perhaps, she was ready to receive the "miracle" of coincidences? (There were others- such as her being assigned a prayer partner who struggles with a congenital disease. They could relate in SO many ways!) I'm just a rambling mother...It's strange, some of my daughter's symptoms lately have been worsening, right when we thought she was so much better. Yet, similar to how others carried her at the retreat, I feel like friends here at DS carry one another...And then, our burdens are not so heavy! Thanks, everyone, for being there :)
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I'm with standstrong -- miracles happen everyday. Sometimes it's in the form of medication or a doctor who can help. The body wants to heal. Keep the faith that all will be well with her.
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Amen.
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