Lyme Disease Support Group

Hi whodo,

I suffer from the same thing especially during herxing. I was found to have a B12 deficiency, and shots for that helped a whole lot. My CT's and MRI came back "boring" (as my Dr says). Your meds could also be throwing you off as well. Maybe ask for a B12 shot and see if things get any better for you. The results were within 1 hour for me, and lasted just the day - but I felt great for that day!

trying to find information on a person that deals with ataxia
in Clinton Township,MI

I have ataxia as well. Just had my "crystals" checked in my middle ear and they are not the culprit (I knew that but what the heck... it's an easy fix so thought maybe it would help to have them examined). Now I am asked to go for a full vestibular work up. Not sure if my ins will cover it, or it it will matter what they find. If they cant fix it, why find it? Sorry to hear you are still having such balance problems. I find that the more fatigued I am the worse it is. I also think it has more to do with my unstable joints than anything else. I am always better after a chioropractic adjustment....

Hi,
Ataxia usually runs in the family history, all the women in my family have had it for 6 generations so far. I know it used to be called "milk hip" way back when in my great-grandmothers day, yet I dont have a good neuro doc up here, so I also have to consider the fibroid tumor taken out next to my spine, it could be causing a pinched nerve that could be deteriorating the muscles around it. Some of it could also be the Lyme I have, so the docs usually give up on me having so many dif. factors surrounding this. I have ear problems, always feel like I have an ear infection, so my balance is awful, I take a menieres med for the dizziness, and imbalances. With all this, I manage the pain with Gabapentin right now, and that is just barely helping. They also gave me the b12, but I dont think my body takes too well to it. I was offered the shots, and I am considering this, but afraid to ever let anything close to my spine or hips again. I remember my oma being on crutches all the time when older, they have hip replacements now, and for the pinched nerves, some kind of laser surgery. Ataxia is very difficult to manage I hear, but I cannot remember what advice they give me anyways, so it does me no good to research it. Just try to google everything about it that you can, or go to library, lots of good info out there now, cause docs really dont communicate very well. I just wanted to let you know that herbal stuff has helped some too, so also try a natural herbalist or yoga, as a chiro only lasts for the moment, and the treatments take alot of time and effort. Hope you get some relief somehow! Usually cold compresses work better than hot....it helps with any swelling, heat only aggravates it. I had them test my nerves and my hands reacted oddly, dont know what that means yet, they only tell me bologny....so far. At least I finally received disability after fighting for 3 yrs, because I kept falling down and have almost broken my neck. Was in a neck brace for awhile, and they now say I have degenerative disk disease there! I have given up on docs, but dont you, until you get a solid confirmation on how to care for this! Just keep searching, I here a good doc is out there, it took me two yrs just to find a lyme literate doc, myself! Good Luck!