What is Lupus
Systemic lupus erythematosus (SLE or lupus) is a chronic, potentially debilitating or fatal autoimmune disease in which the immune system attacks the body's cells and tissue, resul...
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Posted in
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... Read More »
Posted in As many on Dailystrength know, recent genetics discoveries are expanding basic science research into the basic mechanism of health and disease. ... Read More »
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ShhhhhhhThe last two days have been a bit better, ...
suey2y Nov 26, 2009
Thanksgiving and feeling a bit better
Thursday, November 26, 2009 |
Shhhhhhh
The last two days have been a bit better, don't tell anyone. Mon and Tues were awful.
I've even managed to persuade my Mum I don't need babysitting tomorrow so I'm gonna do the school run and just chill with my boys - Wow! Only 6 days to go now YAY.
So, although we don't have thanksgiving, I'm thankful for:
My husband - A true Hero
My boys - the cutest, sweetest ...
1 Recommendation -
I LOVE this day, even through allthe work and prep...
sinde1 Nov 26, 2009
Thursday, November 26, 2009 |
I LOVE this day, even through allthe work and prep, this is my all time favorite holiday and kids love it too. We are all under the same roof and that gives this proud Mom a moment to reflect that life passes too quickly and soon enough they will have their own families to tend to.
So my goal today is to ENJOY the moment. With my mom;s alzheimers, I don't know when the poverbial s...1 Recommendation -
Having fun w the middle child. Gave blood to...
sinde1 Nov 25, 2009
Wednesday, November 25, 2009 |
Having fun w the middle child. Gave blood together, went out 4 chinese andnow Chick flicks!!!!YEAH
C1 Recommendation -
I just want to know why I have to suffer so much. ...
nursemary... Nov 25, 2009
Wednesday, November 25, 2009 |
I just want to know why I have to suffer so much. I am in so much pain. With the fibromyalgia, lupus, now I have arthritis in my entire spine and a herniated disc that is pressing on a nerve and causing weakness and pain down my right leg. I cry out to God for help with the pain. It is horrible when you are in excruciating pain every minute of every day. I just want ...1 Recommendation -
Much better day today since I wasn't being kic...
LivingLupus Nov 24, 2009
Tuesday, November 24, 2009
Much better day today since I wasn't being kicked out of a house. HaHa... so I am cleaning up my friends on here and if I don't talk to you or you haven't written a journal or anything in the past 7 or so months I am removing you. I only like to have friends on here that I do talk to - I'm not opposed to having many friends but I like to know my friends instead of not knowing most...
2 Comments -
Getting ready to head to bed as I am exhausted but...
Ellocin Nov 24, 2009
Journal Entry for November 24, 2009
Tuesday, November 24, 2009
Getting ready to head to bed as I am exhausted but wanted to stop in long enough to write an update.
Yesterday I sent another email to my roommate apologizing for my behavior the last while and sent a copy of yesterdays journal entry and a devotional that I read yesterday after I wrote the entry. She thanked me.
Today I came back to my apartment since I had a medical appointment w... -
Tennessee... Nov 24, 2009
Journal Entry for November 24, 2009
Tuesday, November 24, 2009
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I have not been feeling the best at all. Nonethele...
Resse Nov 24, 2009
Tuesday, November 24, 2009
I have not been feeling the best at all. Nonetheless, I will try to do a low impact workou for about ten minutes. Something is always better than nothing. -
So there I was last night making out my Christmas ...
Resse Nov 24, 2009
Tuesday, November 24, 2009 |
So there I was last night making out my Christmas List. Not asking for clothing, makeup, or the latest electronic gadget. But for diabetic shocks, and body pad massager. Alternative therapies for my health conditions. I was going to add nature made glucosamine chondrotin so I went to the conpany's website. I discovered the change the ingredients and added shellfish! OH, to my dismay I realize...1 Recommendation1 Comment -
Misinformed...Yesterday I thought both duahgters w...
sinde1 Nov 24, 2009
One safely here ...the next one due today!!!
Tuesday, November 24, 2009 |
Misinformed...Yesterday I thought both duahgters were coming home, but one arrived @ 830 last night and the older one is coming today @ 4.Remember yesterday when I talked @ my favorite commericial, where the girl comes home and Mom is right there to hug her? Real life, mine comes crashing thru the dooe, saying..."I gotta pee! I gotta pee!" Not exactly a Hallmark moment...1 Recommendation1 Comment -
So... I had to move out of Kyles back into my apar...
LivingLupus Nov 24, 2009
Tuesday, November 24, 2009
So... I had to move out of Kyles back into my apartment. He has been so so rude lately and very grumpy and when I call him out about it, he would blow up at me. I told him I feel like I'm putting him out and he said I'm not but he has to do so many things different since my mom is staying there and kept complaining about it. So I told him I was going to have my dad come the next day and m...2 Comments -
I am so tired. I am an RN manager and have two peo...
deborah1215 Nov 23, 2009
Monday, November 23, 2009 |
I am so tired. I am an RN manager and have two people out sick right now. For the last two pay periods I have had ovver 95 hours in two weeks. Yes is is nice extra money for christmas and my husband hasn't workied much for the last year, but one day off every 6 days is not enough. We are so busy at work right now, there isn't break time. If I win the lottery I won't be giving tw...1 Recommendation
Thanksgiving and feeling a bit better
Thursday, November 26, 2009 |
Shhhhhhh
The last two days have been a bit better, don't tell anyone. Mon and Tues were awful.
I've even managed to persuade my Mum I don't...
The last two days have been a bit better, don't tell anyone. Mon and Tues were awful.
I've even managed to persuade my Mum I don't...
1 Recommendation
Lupus Information
What is Lupus?
The technical name for lupus is systemic lupus erythematosus (SLE). It is an auto-immune disease in which the immune system cannot distinguish between threats (like viruses and bacteria), and healthy cells and tissue. As a result, the body produces antibodies that inflict cell damage, most commonly targeting joints, skin, kidneys and the nervous system. Lupus symptoms vary, but there are certain commonalities: fatigue, muscle and joint ache, skin rashes (particularly on the bridge of the nose), and ulcers. About nine times as many young women as young men are diagnosed with lupus.
Causes of Lupus (SLE)
A mix of genes and environmental factors most likely trigger lupus, though this has not been proven, and the specific roles of these factors are not known. Likely environmental factors include ultraviolet light, viruses, and certain drugs. A single gene has not been identified as causing lupus, though scientists suspect a group of genes associated with chromosome 6.
Treatments for Lupus (SLE)
There are three main groups of commonly prescribed medications for lupus: (1) anti-inflammatory pain relievers such as aspirin, Aleve, Motrin, Advil etc., (2) Antimalarial drugs, which are helpful in preventing flares and treating general symptoms (Plaquenil is the most popular in this group), and (3) corticosteroids, which consist of steroid hormones and reduce inflammation. Other kinds of medication, such as immunosuppressants, may be prescribed in more severe cases of lupus.
Lupus Resources and Support
As the Lupus Foundation of America notes on its Web site, it is important for those coping with lupus to develop and maintain a strong support system: "Participating in a support group can provide emotional help, boost self-esteem and morale, and help develop or improve coping skills."
The DailyStrength lupus support group consists of individuals around the world coping with lupus. Tapping into their experience and chatting about your concerns and options can help relieve isolation and encourage empowerment.
The following resources may be helpful:
- Lupus Foundation of America
- Article about a lupus breakthrough from The Rockefeller University
- The Lupus Alliance of America
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