What is Lupus
Systemic lupus erythematosus (SLE or lupus) is a chronic, potentially debilitating or fatal autoimmune disease in which the immune system attacks the body's cells and tissue, resul...
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Ask an Expert
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Posted in As many on Dailystrength know, recent genetics discoveries are expanding basic science research into the basic mechanism of health and disease. ... Read More »
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Things are really really messed up here right now....
Ellocin Nov 20, 2009
Journal Entry for November 20, 2009
Friday, November 20, 2009
Things are really really messed up here right now. My roommate and I are having a lot of troubles with each other right now and are at least in agreeance that we shouldn't be sharing an apartment much longer. I don't really know what all to write....just know that I'm feeling miserable and can't stop crying and that right now I'm tired of being an adult and I just ...
2 Comments -
I came home yesterday (well to kyles). I have an e...
LivingLupus Nov 19, 2009
Thursday, November 19, 2009
I came home yesterday (well to kyles). I have an electric hospital bed here, which is great! Yesterday was hard. I was taking 2 of my pain pills every four hours and I kept seeing double vision so I'm taking one every 2 hours and it seems to be working better!
My leg felt like it was 100lbs, it's very hard to manuever and I have to have help getting in and out of bed. The only time I do ge...2 Comments -
I am so tired can barely keep my eyes open. I have...
Resse Nov 19, 2009
Thursday, November 19, 2009 |
I am so tired can barely keep my eyes open. I have so much homework to do and the semester is almost over. Please pray for me. I will have to succumb to what my body wants and that is sleep and rest not homework today and no exercise. Refuse to get upset. I will just learn how to cope with my conditions. GOD will get me through he always has.
1 Recommendation2 Comments -
It is so hard not to cut, it seems as if I am bein...
chynanoone Nov 19, 2009
Thursday, November 19, 2009
It is so hard not to cut, it seems as if I am being kicked, tried….it is such a battle for me as is my eating disorder…so hard to know I am real without cutting, to know that I am real…to feel…to feel real. I knew when I saw the blood, to feel the pain to know I am alive. Even having Tim, it is hard to know I am real. That I am not being kicked, just because a bl... -
Haven't been to the gym in 2 days, feel a litt...
brunob Nov 19, 2009
Thursday, November 19, 2009
Haven't been to the gym in 2 days, feel a little guilty for that, but at least I have been able to get out and run a few errands. That's about all I seem to be able to handle and then I'm done in, it is so frustrating to not be able to do everything that you want to do. We had a business function to go to last night and I just barely made it through I was so tired, and we have another... -
Don't you hate that? Waking up WAY too early i...
suey2y Nov 19, 2009
Thursday, November 19, 2009 |
Don't you hate that? Waking up WAY too early in pain? What do you do? Knit?
Not so bad in the middle of the day, but in the night I always medicate, so now I'm sat here, waiting for everyone to get up, running to the loo.
Grrrrrr1 Recommendation -
I didn't want today to be a day of getting str...
Mojosfire Nov 18, 2009
Wednesday, November 18, 2009
I didn't want today to be a day of getting stressed out, but dealing with school officials who try to make you feel like you have no choices, can really stress a person out. Today, I'm paying the price for my stress. It's hard to type right now, my muscles feel week and like jello in my arms and hands. I'm assuming this is from stress. I'm feeling quite tired today, and I'... -
london was exhausting especially as i had been fee...
jacquelin... Nov 18, 2009
Wednesday, November 18, 2009
london was exhausting especially as i had been feeling ill and not sleeping....doctor messed up my steroids dosage and i didnt notice....thought i was going crazy
The doctor was lovely and seemed to know what she was talking about. They took 12 viles of blood.....she mentioned hughes and sjogens, because of a rash (cant remember what she called it) plus i wasnt producing tears on a test strip....i... -
amethystchic Nov 18, 2009
Journal Entry for November 18, 2009
Wednesday, November 18, 2009
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I havent been really drinking my medication lately...
kathyventura Nov 18, 2009
Wednesday, November 18, 2009 |
I havent been really drinking my medication lately i know is not good for me but lately im not really careing i know there is a lot of thing that can happen to me if i dont but i just to have the will or the care to do so. im not suicidal or anything but i feel like i dont care anymore1 Recommendation -
Today I felt like looking up stuff about lupus, i ...
kathyventura Nov 18, 2009
Wednesday, November 18, 2009 |
Today I felt like looking up stuff about lupus, i dont know why i always do this. everytime i look for more info about this stupid disease i get more scared that one day something like the things i read would happen to me. i read that women with lupus have a higher percent in experiencing miscarrige when i read this my eyes started to water. writing this now tears are rolling from my eyes. the th...1 Recommendation -
Time ago I decided to find my other half; I...
catprince... Nov 18, 2009
Wednesday, November 18, 2009
Time ago I decided to find my other half; I have been alone for almost 11 yrs and never had a boyfriend in between, so I though it was time to start looking.
I met this guy online. He is a Colonel serving in Afghanistan now; he will return in December. We have been making plans for when he returns. He seems so nice and sincere…I guess I’ll just leave it to fate.
I feel affectio...2 Comments
Journal Entry for November 20, 2009
Friday, November 20, 2009
Things are really really messed up here right now. My roommate and I are having a lot of troubles with each other right now and are at least in...
2 Comments
Lupus Information
What is Lupus?
The technical name for lupus is systemic lupus erythematosus (SLE). It is an auto-immune disease in which the immune system cannot distinguish between threats (like viruses and bacteria), and healthy cells and tissue. As a result, the body produces antibodies that inflict cell damage, most commonly targeting joints, skin, kidneys and the nervous system. Lupus symptoms vary, but there are certain commonalities: fatigue, muscle and joint ache, skin rashes (particularly on the bridge of the nose), and ulcers. About nine times as many young women as young men are diagnosed with lupus.
Causes of Lupus (SLE)
A mix of genes and environmental factors most likely trigger lupus, though this has not been proven, and the specific roles of these factors are not known. Likely environmental factors include ultraviolet light, viruses, and certain drugs. A single gene has not been identified as causing lupus, though scientists suspect a group of genes associated with chromosome 6.
Treatments for Lupus (SLE)
There are three main groups of commonly prescribed medications for lupus: (1) anti-inflammatory pain relievers such as aspirin, Aleve, Motrin, Advil etc., (2) Antimalarial drugs, which are helpful in preventing flares and treating general symptoms (Plaquenil is the most popular in this group), and (3) corticosteroids, which consist of steroid hormones and reduce inflammation. Other kinds of medication, such as immunosuppressants, may be prescribed in more severe cases of lupus.
Lupus Resources and Support
As the Lupus Foundation of America notes on its Web site, it is important for those coping with lupus to develop and maintain a strong support system: "Participating in a support group can provide emotional help, boost self-esteem and morale, and help develop or improve coping skills."
The DailyStrength lupus support group consists of individuals around the world coping with lupus. Tapping into their experience and chatting about your concerns and options can help relieve isolation and encourage empowerment.
The following resources may be helpful:
- Lupus Foundation of America
- Article about a lupus breakthrough from The Rockefeller University
- The Lupus Alliance of America
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