What is Lupus
Systemic lupus erythematosus (SLE or lupus) is a chronic, potentially debilitating or fatal autoimmune disease in which the immune system attacks the body's cells and tissue, resul...
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Weird question (I am sure) about hands and feet
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Hello everyone :)
I was diagnosed with lupus well over a year ago but went through many years of misdiagnosis. I have an issue with my extremities being cold and having issues warming up. I was also tested for Raynaud's and it came back negative. The weird part is on occasion I have muscle spasms or something in my hands and feet which cause my the toes on my feet to clench up and not be relieved until I stand flat on them which causes extreme pain, this also happens to my fingers (my fingers curl inward). This happened one time during a hospital stay and the nurse who witnessed it could not explain it. I was wondering if anyone has had this type of issue with their hands and feet. I also have Hashimoto's and wonder if their is a connection there. Posted on 11/05/09, 03:11 pm |
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Yeah I've had the same thing happen to me....my dr's said it was due to prednisone toxicity. I was taking way too much! I would get the spasms several times a hour....can you say frustrating...but after they lowered my dosage, i didn't get them at all. 
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You sound like me! But I have Sjogren's also. I'd love to know what test the gave you for Raynauds. Usually this is a clinical diagnosis by observing the change of color of the hand and feet. My muscles cramp all the time and many posts say to drink lots of fluids. My whole body gets hot and cold more easily. I've read a lot of posts that complain about the sme thing. Don't you love it when a nurse of doctor can't explain what they see happening to you!
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I hate the cold i dread winter i have a heater by my desk and its on everyday I hate having any sort of chill...the funny part about it is in the summer i hate being hot so i need the air on. I do have Rynaud's and the second i am outside with no gloves my hands start to hurt....as far as hand and feet cramps i have never had that.
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well it sounds like vasospasms from either raynaud's or vasculitis which is all small vessell disease..when i would get cold or use my hands too much including my feet they would curl inward and man did they hurt...i have raynauds and its hard to keep my hands and feet warm too even in socks there cold... but i do my best..
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I have this same problem as well.But have not been tested for Raynauds or Sjodoren. Nevertheless, I probably will I would like to know what exactly going on. And I am not on any steroids.
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Thank you for your comments back! I like you all, dread the cold weather because it brings pain in addition to having issues with extremities. I get a lot of questions about why my hands are purple even when I am indoors. Its all so very frustrating.
Keep warm!
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