Lupus Support Group

forgot to mention it is now active whereas before it was inactive

actually thats stage3 and 5

I'm so sorry you're having to go through this. I don't have lupus nephritis but I wanted to tell you that you'll be in my prayers.

actually its myfortic not cellcept

Amy, You have thought this illness for a very long time, you have the bravery and the courage to fight this and get yourself better. I see the strenth in your eyes, dont give in to this fight it like you have before this is just another chapter of your illness, it just a another barrier that you can break you can do this x

Ann

It is not surprising you are scared right now, as we all are when we get a diagnosis that is not so good. Ann's right, you are a strong woman and you have so much to stay well for. Try and think positively about how well the treatment will work, rather than..."oh dear it's not going to". One day at a time, you will get through it. I don't have Lupus Nephritis, but I have battled other dramas, and come through the rough patch and survived. I survived for the same reasons you will....my kids.

So hang in there Amy, we are here when you need us....sending lots of healing energy, love, light and peace from the land of Aus.x

yea but can i come through this twice?? thats my concern ive been down a awful road before... good thing is although this was bad news my kidney function is good im still spilling proteins and blood but everything else looks good..blood pressure is even normal..

Amy,
I agree with that you ARE a strong woman and will get thru this for your kids. I know how scarey it can be...believe me. Not knowing whether I was going to live or die from cancer was horrible and I always worry that it will come back because of all the close calls I have had. Your not alone in your worries and they are normal. I dont know why some of us have so many battles to fight, but we need to fight for our kids. Its good that you have them to distract you when you feel down. The meds may work really well for you and turn everything around again. Theres nothing i can say to make you feel better, really. Just know we are all here for you.

I am here for you too kiddo....we are all going to send healing thoughts and prayers your way...with all that you are going through right now just know that you will be in our thoughts!

Amy,
I hope you 're feeling better now. Glad that you 're thinking positive! Yeah, as long as you have good kidney function and everything else are fine, you should be satisfied about it. There're people with lupus nephritis who have to go through IV cytoxan or even dialysis. With the prednisone and other drugs, the protein spill should get better.
I don't even know spilling protein and blood is considered as lupus nephritis, I always thought it's the renal dysfunction. How much protein are you spilling? How do you define different stages? I had proteinuria long before and my docotr gave me 20-30 mg of prednisone to start with and it works pretty fast! he still kept me on prednisone for a quite long time even my urinalysis is normal.