Lupus Support Group

Welcome X

Thank you all for your replies! I appreciate it and have learned even more from your comments.

So related to not taking any type of supplements to boost the immune system, I do take a multi vitamin and vitamin C .. occassionally Airborne .. Any comments that anyone has about those are welcome.

Thanks !!

Stay away from Airborne....That was the first thing that I took which made me flare. This is when I learned about immune boosters and the negative effect it can have on lupus. Certain anti=oxidents like grape seed extract is also a no no. Most supplements that are marketed to help you from getting sick (like zinc products) stay away from. Dont take anything unless your rheumy ok's it. It can seriously cause us more harm then good. You are fine taking a multi vitamin and vitamin C. There are supplements that can be safe for us, you just have to make sure you know exactly what you are taking and check with your dr. first that there are no drug interactions with them. I dont want you to learn the hard way, as I did.
Hugs

Hello and welcome. I'm glad that they were able to get a diagnosis. I'm still currently trying to get one myself. I'm pretty sure Lupus is what is wrong with me, and it runs in my family. Good luck, and I hope you enjoy you're time with this great bunch of people.

Welcome! I totally understand your relief it is to have a diagnosis. I know some people may think it's crazy to be "happy" to finally have a diagnosis, but I belief it is justification if you will for all the pain, physical and emotional that we experience.

I'm sure if you have been reading posts for a few months you have already seen what a wonderful and caring group this is. As some of the other members have stated this is a great place to lean on when you feel you no one understands what you are going through.

When I was diagnosed with lupus (going on 13 years now) I had never heard of the disease and there was little to no internet support available. It is a true blessing to have the internet resources and support that we now, I honestly don't know what I would do with out sites like this to keep me going.

While family and friends try their hardest to understand what we go through,there is no support like that of someone who has this crazy disease as we truly understand the hell we go through on a daily basis!

I look forward to getting to know you!

Hugs,
Mel

hugs to you. and welcome. be glad it only took 1.5 years. mine was 22 doctors and 7 years of misdiagnoisis. I am sure there are many more in this boat. Lupus overlaps so many other illnesses it is hard to pinpoint. hope your treatment is a sucess.