What is Lupus
Systemic lupus erythematosus (SLE or lupus) is a chronic, potentially debilitating or fatal autoimmune disease in which the immune system attacks the body's cells and tissue, resul...
Join Now
|
What the hell is this??
|
Watch this |
| View More Posts Ignore |
I have been very emotional lately.. I cry for the sake that my life as I knew it has been taken away from me and the fact I have no desire to do anything. I am starting to feel very depressed. Maybe even a bit sorry for myself. I used to be so active now just to walk is a freakin chore. Anyways my hubby took me and my friend out to lunch and I just started crying in the restaurant like a lil bitch. 1. Because the pain is so unbearable 2. because I feel I cant do anything anymore. Anyways my face was on fire from my tears. It actually felt like alcohol or acid was put on my face. Why did it do that? Anyone else have this problem? I swear these doctors better figure out what the hell is going on with me or I'm going to go insane from this pain... I hate my life.. I just want to live again. I don't know how alot of you do it.. Really I don't its a struggle to get my legs to move.. Walking is very hard. I always feel like they are gonna give out and the pain is unreal.. I give you all hugs cause I know alot of you have it worse.
Sorry I'm just ranting I have no one else to talk to but you guys about this.. No one I know has this or even knows about what we go through every day. You all know my husband isn't very supportive. To him I am just a wife who doesn't do her wifey duties.. Posted on 07/02/09, 10:07 pm |
| 12 Replies | Most Recent | Add Your Reply |
| View More Posts Ignore |
RED FLAG, Gidget.......Have you done research on Lyme disease? I will put money that this is what is causing you theses severe symptoms which either is the main problem or triggered an auto immune issue. Your symptoms sound just like those who suffer from lyme disease. It can cause debilitating symptoms and if this is your problem, you need the proper medications to get rid of it. 2 weeks of meds wont cut it if you were diagnosed with lyme disease. I did alot of research on this disease when I was very ill and the dr.s didnt know what was wrong with me. Lyme disease can mimic alot of lupus symptoms and can also be a trigger. I am in disbelief that your doctors arent taking this issue seriously and sending you to an infectious disease doctor immediately. From what I understand there is a Lyme disease test that shows A. If you have been exposed to Lyme disease EVER and B. if it is still active (by IGG and IGM antibodies I believe). Since it sounds like your dr.s are clueless you may have to force this issue and take control of getting to the right dr. and getting the proper tests/treatments.... Doctors cease to suprise me........I would think they would be concentrating on the Lyme disease and doing everything to figure out if this is what is making you so sick.
Im so sorry you have to go thru this sweetie...It sucks when we have to be our own dr.s because the real ones are getting us nowhere at times... Do you have an HMO or a PPO? You may be able to call the insurance company and get a referral thru them to see an infectious disease dr. Always here for you, Meliss 
|
|
|
|
||
| View More Posts Ignore |
I totally understand. When I was first diagnosed, I crying buckets of tears for months. Around the same time I was also diagnosed with MDD, GAD and depersonalization disorder. I am not married but I do have unsupportive relatives who think I need to just suck it up and deal with it. That was a quote. I'm here for you, well all are. It's so comforting because we all have experienced the insensitivity and lack of emphathy. BIG HUGS to you. It's okay to cry, let that stuff out. Also, journal. It helps a lot. I haven't had the burning tears but I have had random spots on my body feel like they're burning, so hot like someone is holding a lighter to my skin. I was actually going to post about that.
Stay strong, you are a survivor. We all are. Take care.
|
|
|
|
||
| First | Previous | Page: 1 2 | Next | Most Recent | Add Your Reply |
