Lupus Support Group

Well it is official, I am dying. My good news quickly turned to bad. My last scan and MRI and CATS plus blood work ups showed that I had some major abnormalities, so they brought in the head oncologist, Rheumy, Urologist, and Nero. They quickly had me sign and explained that I needed to have a spinal biopsy and needed to be put to sleep for it b/c they found several tumors they didnt catch before due to my spine and the disk in my bac k being so degenterated. I had been complaining that the pain in my body was getting worse especialy in my legs and back.

They held me there overnight and found that I had spinal cancer and rushed the rest of the test and called me and my husband in a few days later and was told that I also have cancer in my bones.

We of course asked what the options were. There are a few but nothing that will prolong my life...the doctors all said it would probably take years off my life b/c I had to face the facts I was also fighting Lupus, MS, and have no immune system left. They can try me on some experimental drugs, which I have decided to take, but chemo would not do much good and the chances of me finding a marrow donor were very slim if my body would even take it b/c of the fact that I have multiple progressive diseases. All they can do is keep me comfortable and keep checking on me to see how I progress on the meds.

No one can or will tell me how long I have b/c they really dont know. The hardest part was telling my kids. And Now telling you all. I will continue to be here till the end b/c I think this is the only place that helps keeps me going. I have made so many friends here. Truer Friends than I think I have ever had in my whole life.

I dont know if I have ever done much right in my life but if I can come here and help any of you, I hope I can go home to heaven knowing that I made a little bit of a difference.

Thank you all for allowing me to be apart of your life and group and I hope you all know most of you have touched me in a way that gave me faith back in most people.

Sherry
Posted on 07/01/09, 10:07 pm