What is Lupus
Systemic lupus erythematosus (SLE or lupus) is a chronic, potentially debilitating or fatal autoimmune disease in which the immune system attacks the body's cells and tissue, resul...
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Ok I went to the doctor she is really nice I really liked her. Anyways she is leaning more towards multiple sclerosis or lupus or it could be both.. Then she said that it could also be that my Lymes disease did some major damage. She wants me to go back to my neurologist and tell him to test me for MS. She is also sending me for more blood work. Also she wants me to go to NJ and see a doctor there for Lymes. Because Fl doctors don't know anything about Lymes or how to treat it.. So yeah still no pain meds cause she wants my blood work back.. I am right now in chronic pain. I might have to see my regular doctor. there is no way I can wait 3 weeks.. Anyways just wanted you guys to know..
Posted on 07/01/09, 11:07 am |
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Sweets,
My mother suffers from extreme pain daily due to her medical issues. She is a patient to a really great pain management center. Her primary doctor refered her there. They are awesome. I too am on a pain management program with my primaary doctor and have been now since 2003. I truly do not know how I would cope with out it. The reason I tell you this is because it might be a good idea for you to ask your primary doctor tomorrow it he/she does pain management. If not I am sure your doc can refer you to one. I see my primary doc at least once a month. That is all the pain meds he will give me. So to get them refilled, I have to see him. Plus, if I need other help with this pain and stuff from my lupus issues, I see him before my 30 day appointment. For some folks this works, and for others it don't. Won't hurt to check it out. Gods speed, hugs, snuggles & prayers to you! Rachelle 
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Yeah I'm not sure what the deal was about that. I am in chronic pain day and night. Its worse at night if you can imagine that. I am sooo tired all the time but I have disturbed sleep from the pain. I can't stay asleep. Its really starting to get to me. I have become very depressed. I don't even bother to put make up on or even get dressed up.. I am not like that at all. I am the type of girl that feels naked without make up on. Anyways I hope my reg doctor listens to me. I really really can't take it no more. Melissa I will ask her about it. Hopefully she does do it. Thanks everyone for your love and support..
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Ask for the APS test, my doctor did it along with all the Lupus associated tests in the beginning. Melissa is right, it is a really important test.
Get something for the pain, otherwise you will be a mess, and try not to worry about the results. I was diagnosed with SLE in 2005 and then early this year they thought I was a candidate for an MS diagnosis. Fortunately, things worked out and I just have Lupus and a dicky ticker, but I know how worrying it can be, so hang in there ok! Lots of love from Australiaxxxx
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gidget, I hope your doctor helps you out today..please let us know. I know this is sooooo frustrating, be strong. I gave birth also to 4 but with drugs, YOU ARE BRAVE GIRL. I could not. :o)
I will be thinking of you with good thoughts. hugs, paige
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