What is Lupus
Systemic lupus erythematosus (SLE or lupus) is a chronic, potentially debilitating or fatal autoimmune disease in which the immune system attacks the body's cells and tissue, resul...
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"Lupus Headache" Does it exist?
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I have experienced a terrible headache for about a year. It gets worse during flares but even when Im feeling better it appears sometimes. Its an awful headache, really severe and intense. It doesnt feel like a normal headache, nothing helps painkillers have little or none effects. I used to call it my "brainache"
I havent discussed this with my rheumy since I didnt think it was something related to Lupus. But I sure will talk to him on friday when he calls me. Now I've found some articles about it and some say it exists, some say it doesnt, My questions are: Have U experienced this kind of "brainache"? Does the Lupus headache exist? What is the cause of it? Posted on 07/29/09, 01:07 pm |
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I fight headaches almost everyday. I get migraines alot. Are you sure yours is not a migraine? You can get meds for it. I take Maxalt 10mg dissolved under the tongue. If that don't work i go to the doc for a shot. I do think headaches come alot with these diseases. I is hard to live in pain & feeling like you just don't enjoy life the same as you used to. So i think the stress of all of this is hard on us & is the cause of our headaches. Tracy would be the one to ask. She may know more about the connection between Lupus & headaches.
Good Luck, Hugs, Deb 
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I had migraine as a child and I had meds then and they worked well, this "new" headache feels so different and none of the migraine meds I've tried nor my ordinary painkillers have helped...
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I had migrains as a child too. I also get the headaches you are describing once in a while since being on all my meds, and NOTHING takes them away either. Maybe a special headache medication would work, but the regular pain killers dont do a thing. As a matter of fact, I had one of these headaches this afternoon and it got better after I put my medicinal MAGNETS on my ears. Yes, special magnets and they lessen my headaches every time. If you or anyone is interested in these, send me your email address and I can forward you ebay sites that sell them. They are not regular magnets. They are very strong and used for medical problems.
Melissa
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the only advice I can give you is when your having a headache if your capable of checking your blood pressure I would.. I get lupus headaches but there related to High blood pressure.. when my blood pressure gets high is when my kidneys are acting and no matter how much medicine i take they wont go away..of course im on blood pressure pills now.. have you been diagnosed with CNS lupus?
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Thank u about the tip of magnets, I will send u an email!
I have very very low bloodpressure. Last time they checked me It was low only 90/45 and that was during one of those "brainaches" I've only been diagnosed with lupus, in sweden they dont specify but I usually have inpacts on CNS when I have flares... I get balanceproblems, restlesslegs and so on...
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I use to be headache free and I believe my migraines started when Lupus took over. I too fight headaches almost every day and I also have low blood pressure. Imitrex helps sometimes but when it gets intense I have a migranal nasal spray to use. I dislike going to the emergency room to get relief so the migranal is suppose to keep me okay while at home. I really haven't found anything that helps and have been on 4 different migraine meds. I'd be up for trying the magnets too.
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I've been getting random headaches in the back of my head and going up to the crown for the past three years. Does anyone else get headaches there?
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I never used to have headaches other than a sinus headache occasionally. Since I've had lupus and sjogrens I've developed bad headaches and severe migraines. I also get these spasms in my head. They say it is from the lupus. I was having to go to the emergency room everytime I got a migraine because they were so severe I couldn't get rid of them on my own. I take the injections now when I feel one coming on and that seems to be helping me. You may need to see a neurologist.
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My "Lupus headaches" are different from migraines (which I have had sporadically). I described them to my doctor and he agrees "it's Lupus". I had a hemiplegic migraine late last year.....had MRI's etc. etc. and am seeing a Neuro. No Lupus involvement has been spotted in my brain.....but those "Lupus headaches" can be very debilitating...Tramadol and rest takes the edge off....but nothing takes the pain away completely. They always accompany a "flare" and rarely occur "alone"....
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I'd love to know what type of injection the doc has prescriped for you mzkimmy because mine are er worthy.
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