What is Klippel-Trenaunay-Weber-Syndrome
Klippel Trenaunay Weber syndrome or KTWS is a medical condition in which blood vessels fail to form properly. Although the cause and processes surrounding Klippel Trenaunay Weber s...
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When theres nothing left to give and nothing you c...
faithhorb... Aug 30, 2009
Sunday, August 30, 2009
When theres nothing left to give and nothing you can take, my eyes open up and see whats at stake. Theres nowhere to run and the only thing i'm hiding from..... is myself. -
Cloudy days will come and go and some how I always...
faithhorb... Aug 30, 2009
Sunday, August 30, 2009
Cloudy days will come and go and some how I always find hope. I'll stand through the storm even when nobodies home. Cause I don't wanna be burdoned, I wanna be strong. -
I also went and got copies of my bone density scan...
KTandME Aug 04, 2009
what I have to go through with my doctors
Tuesday, August 4, 2009 |
I also went and got copies of my bone density scan and my ultra sound of my spleen and some blood work up. I had no idea that I had switched sexes and that I was "post menopausal"!!!!! That is what my bone density scan stated. This is a normal snafu for my VA hospital.
Where to start!!!! People might say the beginning but that is just to obvious so I will start at a place that is somewhe...
1 Recommendation -
I have been having more and more back pain again. ...
KTandME Jul 29, 2009
Journal Entry for July 29, 2009
Wednesday, July 29, 2009
I have been having more and more back pain again. I have to say that it's really bothersome and painful :P
My back locks up on the left side and I am guessing that it's my leg length difference. When it does lock up I can't even walk. I wear a knee brace on my right leg because of the arthritis that I have in my knee. Again I think the arthritis is related to the KT but I have to keep ... -
I have be told by a doctor/s that I have klippel t...
KTandME Jul 26, 2009
Sunday, July 26, 2009 |
I have be told by a doctor/s that I have klippel trenaunay, Parks Weber and even possible Sturge Weber or a little of each, I guess it just goes to show how little my VA doctors know
I have had doctors have told me that I have parks weber. I have concerns that I have parks weber as I have an AVM that is connected to my thoracic artery.
Wow where do I start? I have a lot of pain, I have a lot of cra...1 Recommendation
1 Comment -
I feel as if I am falling apart here. My leg has b...
PrisInGa Jan 24, 2009
I don't know where to turn or what to do.
Saturday, January 24, 2009
I feel as if I am falling apart here. My leg has been hurting so bad lately. I toss and turn all night long, and I am so fatigued all day long from lack of sleep. I went to this clinic close to home that charges on a sliding fee scale. He gave me some ultram for pain and flexeril for my stiff neck issues. It helps very,very little. I need 2 things here. One I need to find a Dr. in Atlanta who kno... -
I feel as if I am falling apart here. My leg has b...
PrisInGa Jan 24, 2009
I don't know where to turn or what to do.
Saturday, January 24, 2009
I feel as if I am falling apart here. My leg has been hurting so bad lately. I toss and turn all night long, and I am so fatigued all day long from lack of sleep. I went to this clinic close to home that charges on a sliding fee scale. He gave me some ultram for pain and flexeril for my stiff neck issues. It helps very,very little. I need 2 things here. One I need to find a Dr. in Atlanta who kno... -
having a bad day!Still getting bad headaches and a...
NikkiIsGod Jan 16, 2009
Friday, January 16, 2009
having a bad day!Still getting bad headaches and alot of pain in my ktws areas!ttys.Nikki -
Hi, i had another insent headache that went into a...
NikkiIsGod Jan 02, 2009
Friday, January 2, 2009
Hi, i had another insent headache that went into a mirgrane so i lay down sleeped but woke up today so hungry it was werid and i ate big salad yesterday.But again once i start to get something my pain level is higher and it sucks b/c then i don't finsih me food.But i felt sharp stabbing pain non stop and its very fustrating when i'm up again around 2am and medication don't work.I...1 Comment -
I think my last goal came off wrong...I am still 9...
huxmart Jan 01, 2009
Thursday, January 1, 2009 |
I think my last goal came off wrong...I am still 9 years sober.... the one day was a thing with with new years eve...If I make it through the night one day at a time..one new year at a time.....came out all sideways in my goal.....1 Recommendation -
Whats up everyone, I'm excited to bring in the...
NikkiIsGod Dec 30, 2008
Tuesday, December 30, 2008
Whats up everyone, I'm excited to bring in the new year and tommrrow! I can't wait to light of fire crackers 1/1/09 am!I love fire crackers sence i was little but its so much fun being the one who lights them and watch.Eating good food, having family and friends is always a great combo(depending if thier just trying to ruing ur life or are the best things in ur life; but r...2 Comments -
Hi, i was just woundering if someone can tell me i...
NikkiIsGod Dec 30, 2008
Tuesday, December 30, 2008
Hi, i was just woundering if someone can tell me if i'm having hot flashes or somthing else b/c i keep feeling like my insides r burning up(mostly my face other then my other helth problem and i know y it dose it but where it happend thier it dosn't turn red)and my face becomes red and so dose my chest but my chest look like i scratch it but i don't and i been infront of ppl and it ha...3 Comments
Sunday, August 30, 2009
When theres nothing left to give and nothing you can take, my eyes open up and see whats at stake. Theres nowhere to run and the only thing i'm h...
Klippel-Trenaunay-Weber Syndrome Information
Klippel Trenaunay Weber syndrome or KTWS is a medical condition in which blood vessels fail to form properly. Although the cause and processes surrounding Klippel Trenaunay Weber syndrome are poorly understood, the disease is diagnosed by the presence of at least two of the symptoms on a single extremity: A distinctive port-wine stain with sharp borders, Varicose veins, Hypertrophy of bony and soft tissues, that may lead to local gigantism.
The disease affects men and women equally, and is not limited to any racial group.
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