What is Klinefelters Syndrome

Klinefelter's syndrome is a condition caused by a chromosome nondisjunction in males; affected individuals have a pair of X sex chromosomes instead of just one, and is associated w...

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I am new to this. Are there any support groups in Maine or in New England that I can go to. I was diagnosed 3 years ago by my doctor after tests. At the time I was under the impression it just caused sterility. Thats all the doctor informed me of and there was nothing they could do. It wasn't until recently I discovere there is more to it than what I was told. I am just trying to work through this the best way.
Posted on 03/01/09, 01:03 am
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Email me when others reply to this topic help
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Reply #1 - 03/02/09  5:47pm
" i know its very had i am the same way but i have pain in my testies and they cant figure out why i goithing through lots test and it sucks. if u have questions or need help let me know "
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Reply #2 - 03/12/09  2:03am
" I have experienced pain too and it was bad at times. Tests were done including ultrasound because the thought was possibly a descended testicle. The tests came up negative for that but positive for Klinefelter.
It all makes sense now to why times were so difficult growing up. Behavioral issues in school, difficulty with peers, and on top of it I was born with other disabilities. I do have an idea where you are coming from. It is hard to accept but there are others out there that do understand. "

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