Klinefelter's Syndrome Support Group

Hi I was diagnosed with Klinefelters at 36. It wasn't until recently did I get a better understanding of what it is. I am upset too and it is very hard to accept. Therapy can help deal with the initial shock and it is beneficial. From what I have found out through research there are treatments available. As far as your pain I have experienced it to and every once in a great while feel it. Tests showed nothing. It is possible you may have a desending testicle. This could be very painful. Your not alone. I am in the beginning of dealing with it.

Hi,
I am K/s at birth found out at 22.
Yes, you will never have children although I have never taken testoterone and or fertile drugs. I have live as me.
I am Intersexed, I live as a fe-male. I have no hair on my arms or my chest. I shave my legs,belly and arm pits due to I do not like the sweaty smell.
You wll be able to have sex no different and your will experience pain before others do. Due to your system not being able to introduce the manly effect(testosterone) such as hair and voice.
I am milk lactose,I build kindey stones when I drink dark colored soda ie...pepsi, coke.
You can live your life either two ways be depreesed the rest of your life, keep pondering the question why me, Let it beat you up or accept it live your life as you may, ask for forgivness because you feel this is what you want. Live your life for you.
Lifes a bitch but You have to figure out why you are standing there and wondering what do I do now.

hello there what type of KS do u have

beacuse not every one has the same as the next person with KS & yes some people can not have children but others can, Just like some people will facial hair & some people will not, I have read on line that people wanting to have children with KS have to see doctors in germany as the add elc-tons to the speam which them would make a baby

some people with Ks dont have a sexdrive at all but others do

& if you are getting pains from your testies you should see your doctor of go to a hospital as this is not right at all

hello there what type of KS do u have

beacuse not every one has the same as the next person with KS & yes some people can not have children but others can, Just like some people will have facial hair & some people will not, I have read on line that people wanting to have children with KS have to see doctors in germany as the add elc-tons to the speam which them would make a baby

some people with Ks dont have a sex drive at all but others do

& if you are getting pains from your testies you should see your doctor of go to a hospital as this is not right at all i not know this to be with KS before "

Hello. I was just recently diagnosed with KS at 33. What a crappy year this has been and now I find out this. The doctor told me I can still have children. Everywhere I turn for advice they say I still can have kids. You can adopt or get a donor from a sperm bank.
I am a 47 xxy mosaic. There is supposedly a chance of me producing sprem, so says the doctor. I am currently on an expertimental drug called Arimidex. Which is suppose to help lower the estrogen in my body. I am also trying another experimental drug called Low dose Naltrexone or LDN.
I have been feeling the pain in testies for about a year now and it can really be a bother some. My sex drive is still somewhat normal. You just have to remember that is disease is not always going to affect everyone the same.