What is Klinefelters Syndrome
Klinefelter's syndrome is a condition caused by a chromosome nondisjunction in males; affected individuals have a pair of X sex chromosomes instead of just one, and is associated w...
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New here..Mom of KS ,lots of history
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Hi, I'm new to this group. I am the mother of one son with 47XXY Karyotype. He was diagnosed when he was 12 because we had him tested for EVERYTHING since he had some very significant issues while in Middle School, with peer relationships, socializing, and learning disabilities. He was very thin and very tall for his age, but, I noticed his height was all legs, his torso was normal in height.
I have no specific questions right now, I just found this group from another DS group I belong to, and I joined so that I can offer support, and gain inforamtion to continue to help my son. He is 30 years old, but not as mature as most his age. But, good news is, it doesn't stand out as much now as when he was in school, the imaturity I mean. He is not on Testosterone replacement, but he is not on any insurance plan either. He went through a very dificult time maintaining employment and had like 14 jobs in one year. He can 'sell' himself as able to build a skyscraper, but, when it's time to do the job, much of the intricacies of the work assignment, he has trouble with. I know this isn't true of everyone with KS. Anyway, glad to have found your group! Posted on 07/19/08, 11:07 am |
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I am a Klinefelters patient with the 47xxy kayotype as well. The same trials that your son is going through I went through the exact same thing in school especially with my peers. I am all legs and during school years I was very thin, but since then I have gained lots of weight like 100 pounds in which now I am struggling to get off even when excersising and eating healthy. There are lots of things that I have gone through that probably relates to your son. 
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My son has just been tested positive for Klinefelters. He sounds just like yours with the same problems and same shape. He's currently having problems with being bullied at school, but he's getting into trouble for standing up for himself rather too over zealously. Hopefully we can learn more and help him to merge into the background, if not quite fit in.
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hi i Am 24 now and i just found out i have this sndrom and now what u describe u son went through i went through. but my mom never had me check she just said i was depressed. any how i need to know information to i up for chatimg any time u like to. i hope u son and u can share and shed light on me.
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Mockingbird, I feel as though we've lived many of the same ups and downs. My son also is thirty and has not had a stable situation since he was in Jr. High. He has no insurance and no real desire to seriously investigate KS. He has known and asked many questions since we found out by accident at his age of five.
He is extremely inteligent in many areas of life just has difficulty with the follow through. He brings me the warmest of smiles I've watched him grow up to be a wonderful warm and sensitive man. He still looks like he's about 19 y/o and is carded ALL the time. Much of the time I see a mature young man, I am very proud of. I wish you luck and love with your son. I would love to talk again. Peace and Tranquility
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Hi I have Klinefelters and did not get diagnosed with it until I was 36. It was a shocker to find out as an adult and that it wasn't diagnosed sooner. I had a very difficult time in school as well with peers and behavior issues. The trials your son went through sounds similar to what I went through. Its groups like these that help others out.
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