What is Kids-With-Cancer
This community's purpose is to provide a place for parents and kids with cancer to support each other. Cancer is a class of diseases or disorders characterized by uncontrolled divi...
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Wednesday November 25, 2009
Members in Need
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I'm sick, fighting some nasty viral thing, so needless to say i am not a happy camper. Kylie went back onto the vent yesterday. She has a lung infection, probably pneumonia. They have done cultures and are giving her antibiotics. If it isn't pneumonia, it may be a problem with one of the shunts that they put in her heart. That means a cardiac cath, then possibly more surgery. The one...
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I'm preparing my first Bible Study on John 3:16 so this verse very much on my heart right now. I think it is the most important verse in the Bible, The verse that heralded the change, the new covenant. Through Jesus we can approach our Father with confidence and joy, knowing that his sacrifice makes us fit for heaven.
For God so loved the world that he sent his only son Jesus that whoever beli...2 Recommendations4 Comments -
As most of you know, Farah Fawcett and Michael Jackson died last week. Many of you know of Farah, EVERYBODY knows Michael Jackson, It's all over the news, yada, yada, yada
There was a third death last week - Ethin RaiLuc Twigg, Age 5 and 1/2 months old. Ethin was one of our hlhs kids, kind of like Kylie. First surgery, the Norwood, went great, but they had to do the 2nd surgery, the Hemi-Fonta...1 Recommendation3 Comments -
hello every one today is a painful day my nepheu has passed on 16 years old from a atv accident crashed on a tree ,,,,,,,i'm glad that N.A has showed me how to deal with life on life's term i'm able to deal with tis lost ///////////no one reads my journal anywys but if some one happens t see this please write me and send me a hug i really culd use it right about now thank you1 Recommendation3 Comments
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Had some sad news that I wanted to share with all of you. Ally died yesterday morning. Her condition deteriorated rapidly Saturday, they put her on an artificial heart... that truly is doing everything you can... but her condition worsened and she died Sunday morning. She truly was a brave and shining soul and a CHD warrior of the first order. If you wish, her obituary will be in today or tomorro...1 Recommendation2 Comments
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I received a phone call today from Haven's nurse confirming her schedule and list of medication.
Rituximab will be every Friday and we will continue with Cyclosporin at 2 times a day with levels being check every other day. With Rituximab she will get Benadryl in the port prior to administering the chemo. This helps her with any reactions to the chemo and I like it because it relaxes her.
Ritux...1 Recommendation1 Comment -
So ive had asthma for about 2 years now and its bad to the point where i cant run laps in gym class anymore. i used to be in track and soccer so its hard for me. i hate how i have to use my inhaler every day and how its chaged me so much. i have chest pains all the time. I get headaches and migranes now and ive passed out a few times. Its not even something that i can control and thats what is ha...1 Recommendation
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Where do I begin? How do I let it all out? I'm taking a class on counseling, and I have had it drilled into my head that you cannot keep your feelings bottled up inside or they will grow and grow until they burst into a thousand pieces. I have bben packing away my feelings for many, many years, but I need to let them out. I'm sorry for any of you folks who stumble ...1 Recommendation
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First off... I'm freezing!!! I can't seem to get warm and I'm very tense. I guess it would be good to take a xanax or something right now.
My relationship with L is intense. He is angry with me or he just says that I hurt his feelings because I choose to spend time doing other things rather than being with him. Well, I'm not engaged or living with him. ...1 Recommendation -
Updating my jounal because I haven't in a while. Still having trouble accepting all that is happening to me and very frustrated the past week. I went from darvocet to 5 mg. vicoden to 7.5 mg. vicoden to now being on methadone. The first few weeks with the methadone were great!!! I felt like a new person, then the weather changed and with my refill of methadone I feel l...1 Recommendation
