Kidney Stones Support Group

My doctor actually told me I was going through my pain medication too quickly...even though one bottle is only supposed to last 1 week, I had to wait a whole month. It's just part of their job...but I empathize with you. I take peridium OTC and 1/2 a pain pill when I can't stand it anymore, or if the stone pain is making me literally ill. I had a lot of problems with being able to go to work when I had a 4 month bout of stones. Hang in there!

I also have learned to control myself with the pain, mostly I just lay limp cause if you tighten up the way your body wants to it just seems to hurt more later cause you wear your muscles out. I also learned to breath through it. It makes it hard for the ER to determine just how much pain your in. But then they get mad when you scream. My last visit to the ER I laid there for 5 hours and all they would do was give me a pain killer in the hip, even after I told them it wouldn't work, and it didn't. I happily took my prescribed pain meds and went home. It took me a week to pass that stone, when i finally did I took pictures of it next to a pencil eraser, they were about the same size.

The first time I had a nurse accuse me of faking it I was pregnant and she asked my husband if I was pretending. I know exactly how you feel.

Try mixing your meds with marijuana.....it helps me substantially

If your doctor will not provide you with the right pain control meds call him on it! It is inhumane treatment. Find another doctor. We that have chronic kidney stones are a rare bunch and there are only a few that understand that we need to be able to control the pain, It's a quality of life issue. I an lucky as my doctor seems to understand and writes the script when I need it.

I don't have a kidney problem but my younger sister had megullary sponge kidneys & was recently diagnosed with several dozen kidney stones. She is constantly in pain and her doctors refused her the proper medication as well. When I found out I was furious! Most people think they know what the pain feels like but they don't. You need to tell your doctor how bad the pain is, and don't let them try to convince you otherwise. It's your body, you know your own pain threshold. One doctor made my sister seem like she was addicted to pain meds. She only takes them as needed and she is in constant pain. You have to do something. Good luck.

Call me weird, but whether it is true or not, perhaps you can tell them that you have a condition that has meant you have had to take more analgesics than normal and so they don't have as much effect, so you sometimes need more than average for the same effect.

Perhaps it is the case, perhaps not. Perhaps you can ask them what you can do otherwise, ask them for recommendations otherwise. You can ask them how many patients they know that have had as many stones as you and how they might consider a person might start reacting to the pain after a while... do they still squirm as much after a while?

Seek out pain control treatment in addition to the kidney stone treatment as it looks like the kidney stone issues will be with you a long time. There are sometimes treatments that will make it so you only need to take the pain killers at the worst.

I'm currently going through an attack and deciding when to go to the ER. If I can avoid it I will because I haven't had flu or H1N1 shots yet and tend to pick things up in Dr offices and such places.