Keratoconus Support Group

I had the same lenses i eventually gave up, the pain that came with it just wasn't worth it.

SueMarie,
Stay strong and keep fighting! I have battled the samething you have. Turns out that a lot of the trouble I had with dryness and discomfort was ocular allergies! My Doctor gave me some eye drops for allergies, the otc versions did nothing, and it really helped! The eye drops that he gave me are called Pataday. They are not for everyone. Ask your eye doctor if they may be right for you.

Also the multiple lenses to try before you get the right fit is normal for people with our eyes. :-( But you can do it. Also ask if your eye doctor has other patients with KC. If not you might want to discreetly ask around to see if you have a physician in the area that has a few.

Charles

they go dry and its so bad to wear RGP

Did you try being fitted with Soft contacts prior to RGP's? I would suggest wearing the soft contacts if at all possible before wearing RGP's. The problem is that RGP's are hard on the cornea's and if you have a Keratoconus they will cause your cornea's to become thin and weaker requiring a transplant or intacs in time. Plus they are painful and the soft lenses wear much more comfortably without much of the drying caused by RGP's. Hope this helps!

If you can't see out of the soft contacts by themselves try the piggyback method. This is when you wear a soft with a hard on top. Lot's of doc's don't like to use but it will save most of the discomfort and won't result in you becoming contact lens intolerant as fast as RGP's alone.