What is Interstitial cystitis IC

Interstitial Cystitis (commonly abbreviated to "IC") is a urinary bladder disease of unknown cause characterised by pelvic and intense bladder pain, urinary frequency (as often as ...

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Disappointed
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I have been reading the posts on here recently and I cannot believe what I am reading! I am disgusted and appalled. Just because someone decides to use a certain type of medicine or a certain type of vitamin doesn't give someone else the right to send them a nasty message saying that they shouldn't be taking this. Please try to be a little more supportive, not so judgemental. I joined this group because I needed some advice and have appreciated everyone's help in the past. This is just a reminder to be open minded and supportive, please. We all need each other because IC is a difficult road to go down. This is why I joined this group, for support. No one is an expert, just remember that. Thank you for taking the time to read this posting. Please remember what works for someone may not work for someone else.
Posted on 10/29/09, 01:10 am
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Reminder: This is a support group for Interstitial Cystitis (IC). We trust you will do your best to remain positive and helpful. For more information, see our rules of the road.

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Email me when others reply to this topic help
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Reply #1 - 10/31/09  12:55am
" Thank you ~ I think you are helping to turn the trend around! Well said!

This condition is so unpredictable for me and I feel so vulnerable. Finding a safe place to learn from others is why I come here. But I noticed we were being dominated by an .... attitude..? And I think being aware and intentional is what it takes to change that ~ thank you. "
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Reply #2 - 11/01/09  4:49am
" You're very welcome! Thank you for the nice reply. I hope that things start to change on this site because we really need each other, especially since we have this disease. I have met such wonderful people on this site and hope to continue using daily strength. I hope you are having a great day. :) "

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