What is Interstitial cystitis IC
Interstitial Cystitis (commonly abbreviated to "IC") is a urinary bladder disease of unknown cause characterised by pelvic and intense bladder pain, urinary frequency (as often as ...
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symptoms.IC ?
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hello, i have been having a battle for two years now, and i am still not diagnosed. a few months ago i started ot think it could be endometriosis. but i am also leaning towards IC.
can you please share your symptoms ? i have - coldchills that radiate out, down legs and all over tail bone pain rectal pain lower back pain ( further inside ) fatigue nausea lightheaded/dizziness/faint leg pain hip pain groin and inner thigh pain i get hot flushes inside my lower back area, the as soon as that starts it can turn into severe chills constipation and diarreah migraines the pain/ache runs all up my back, causes numb ears, chills on head and tingly feeling. bloating preassure on vagina and irritated feeling twitching ! in tail bone area, legs etc i hope someone can help a little. I am due for a laproscopy soon and a hysterscopy. but i think a look inside bladder would be good too, and even a colonoscopy. im so lost ! Posted on 06/29/09, 03:06 am |
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Hello!
Wow.. that's a lot! The only symptoms for IC I have had were burning and pressure of the bladder and urethra. I have experienced chills when in a really bad flare but that's about it. Have you been tested for a UTI or anything with your kidneys? What do the doctors think? I wish you all the best and if you need anyone to talk to I'm here! Stacey 
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yeah its alot put in words.. but i feel it all at once as a whole feelig.
well im having a lap done to see for endometriosis and a look inside uterus. i have beendismissed by many docs who think everything is in my head... not nice :0/ its all so confusing. i have something ! xx
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I have a lot of physical symptoms that are not exactly a direct result of Interstitial Cystitis because really that just means irritation of the bladder it is not really a diagnoses. But I started physical therapy for pelvic floor dysfuntion and my pt told me that basically it is all related. My stomach problems, bowel problems, tight pelvic floor so it hurts to have intercorse, my bladder doesn't move right and it is in a constant state of tightness, I have terrible cramps during my mestrual cycle. But pt can help I have only been to one session so we will see. I was having bad cramps in my legs and I could hardly sleep at night for the pain and I discovered I am vitamin d diffiecient so I take a vitamin d supplement.
This is just my opinion but if I were you if you do have IC start with diet and seriously think about physical therapy before medicine because it might helps you more in the long run. Feel free to contact me if you want to talk or have questions. Good luck Tori
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I have alot of those symptoms as well and got a dual diagnosis, my endometriosis supposedly has attached itself to my bladder wall causing it to not empty completely & the only course of treatment (they say) is surgery, which I am very unhappy about. I've been on Bactrim non stop for a week or so and that is getting old. Prob. going for a 2nd opinion before the week is out. Good luck to you!
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you sound a little like me-I have been to many docs and had many tests-cat scans-mri-cystoscopy-having a lymph node biopsy on thusday--I keep getting the you are anxious bit from docs-so frustrating
my symtoms frequent urination ab pain left arm pain? chest discomfort-sometimes like pinching pain pelvic pain periods are now shorter and lightr more brownish? white tongue lymph node back of neck raised 7 months jaw pain and neck soreness itchy throat,ears,private areas burning in private areas loss of weight-15 lbs,cough I am a wreck-I also do not know what to do next-I think laproscopy then possible colonoscopy I had te endoscopy done so far cannot figure anything out I have a fibroid small did you have a laproscopy?
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everything has been eliminated except things to be found through lap. ie- endo, ashermans, ic.... . also have not had a colonoscopy.
i get jaw and ear pain too. its from the local point my abdomen though. have they tested you for hodkins lymphoma ? :-/ ... the itching, weight loss, lymph node. i also only get minimal blood, periods were up to 3 weeks late. now im on the pill ( b) and its on time, but still same with the bleeding... brown and black, no proper flow. my toungue is also affected by illness.
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having the node taken out thursday-we'll see-all my blood work is normal,apparently that does not mean you cannot have lymphoma or other cancers??
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srry i have no idea. they shouldnt miss it, and if you are concerned say it straight out you want to be tested for it ?
xx
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Hey hun - a lot of those symptoms sound like IBS & vaginismus... maybe check out the symptoms for those online and see what you think. Good luck!
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no its none of them. its alot worse and i feel it inside lower back area
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