IgA Deficiency Support Group

this is what I take every two weeks. It works, if you need it and you do NOT take it you are at risk of getting a serious lung disease if you were diagnosed with hypogammaglobulinemia. It has helped me immensely but now needing a higher dose. as for shots they can hurt because the gammaguard is so thick. I would ask if it can be done thru iv its much easier. I am also allergic to it, so I have to be pretreated with Solumedrol,demerol,and benadryl b4 my infusions. you should be fine.

my husband takes the Human Immunoglobulin weekly with no problems. we have noticed it works great and helps keep the infections down. they do have a numbing agent you can use so you dont feel the needle stick. He takes his sub-q which is in the fatty tissue not IV. He was doing IV which you have to do that in the dr.s office and this you can do at home which is much better for him.

I get immunnoglobulin treatments 1 a month by IV they give me 7 96 ml bottles of it.It is made by baxter and is quite expensive. http://www.ecomm.baxter.com/ecatal...

Thank You Bryanw

What Is everyone on this medicine for? IgA Deficiency? Which one and would anyone share their story with me and how you feel?

Thank You
Kimberly

I get it for IgA Deficiency and you can read my story in my journal

When did this treatment come out? I haven't even heard of it yet. How does it work? I was told when I was first diagnosed, that I couldn't get blood transfusions or injections. Why are you different?

Just to help clarify...our doctor also told us that Immunoglobulin treatments will not work for IgA deficient persons. This treatment, in my understanding, is for people who also have IgG deficencies and/or CVID (common variable immunodeficiency. If you are only IgA deficient, there is no treatment now known. This is according to our Immunologist.

I do have common variable immunodeficiency and low IgG and IgA levels. sorry I should have been more specific.

Oh, thank you.

I have Common Variable immne eficiency and recieve gammaglobulinemia infusion every four week also. I did not know about the solumedrol or demerol but do take benadryl b4 my infusions but am beginning to have more reactions.

Thanks for the info. Sometimes docs need to be pushed a little1 :)

They really help my energy level immensely and keep my infections down. My doc has noticed my IgA numbers are down so has just increased the frequency.

Would anyone be willing to share the numbers..IgA? I do not really understand normal and abnormal numbers and what they mean?