IgA Deficiency Support Group

mine isn't mild. i pretty much live inside because everytime i go out for even a few minutes around people i get really sick and it triggers my asthma.

i wish i had a plastic bubble

I know how tough it is when you have such severe asthma. At one point, my son missed a month of school, but if you can find a way to protect yourself; you can still join in activities with other people and get out. Have you tried using a medical mask? Make sure your doctor is paying attention to your issues and get a new doctor if you aren't getting the treatment you need to stay as healthy as possible.

i basically had to quit school.
they don't understand my situation and really dont care to.
shame, i'm almost a senior too in college.
i might just finish off with an online college.

well even if i did the medical mask, my asthma is so bad half the time i can hardly do things. i go out on my back porch, in the pool and out front, sometimes to work with my mom.

i dont shake hands or give kisses anymore. that seems to help a little

I certainly understand your situation. It is terrible, and it is hard for our families to understand and deal with as well. Reacting to foods everything one of them, Pain with it. Never know when the next thing will be severe. I don't have any doctor who works with me on this at all. They act like it is nothing, so I have to just work on my own with my own vitamins, herbs. I wish you well. and will continue to search for help. My Doctor just tells me that they can only deal with the problem when it comes along. So they don't give any ideas for preventative. But also don't give any help when I show up, because they know I could react to it. Keep Hanging In.

I'm still running tests to find out whats wrong with me. I'm already done blood work, an ultrasound on my ovaries, and other tests. I have to go in and get another 26 more blood tests and an upper and lower endoscopy. I've been throwing up and I have pain in my right side, lower abdomon. Does anyone know what it could be?

I don't know who told you that Iga defiency is a mild health problem. I was told that I am very ill due to Iga defiency.
I was told that I have Primary Immune dificiency recently. First I was told that I have CVID and the other day I was told I have PID because my IGA's are so low.

I am very allergic, have asthma, digestive issues, severe nerve damage to my feet, Sjogrens and other problems.

I am now on a Celiac and lactose free diet and it is helping me not experience so much pain and it seems the diareah is gone.

This seems to be a difficult illness for me and I would assume for others who have this too.

I would like to thank all the people that suggested a Gluten Free diet, it has really helped me with the symptoms that I was experiencing. I started eating Gluten and wheat free 5 days ago and I have never felt better. I have just been recently digonosed with IgA deficiency after years of getting sick all the time and being anemic, and suffering with diarrhea, Asthma and feeling tired in addtion to developing food allergies. I can feel for anyone who has these sypmtoms and more because it really takes a lot out of you, and has a very big impact on your life.

Hi everyone. I am new to this forum and looking for support/help. My daughter who is now 11 was diagnosed with CVID when she was 4, after a serious surgery to remove swollen lymph nodes in her neck. They were wrapped around her Corotid artery and her Jugular and obstructing her airway! Was in surgery 6 hrs and intensive care for 3 days ina drug induced coma. Spent 4 days after in Peds and 6 months of speech therapy due to stretched palate and muscles in her neck. She made a full recoverya nd besides the fact she's had mono once (cytiomegla virus[sp?]) and viral pneumoni once and bacterial pneumonia once in the last 7 years, she's been healthy until the last couple of months. She has asthma that has really gotten bad. Takes treatments 3 times a day. They are considering Immunotherapy for her. Her childhood immunizations didn't hold so we gotta do those again too. She has always been an athlete in spite of it all. She plays Basketball as a forward (starting 5!) Is lead pitcher for her softball team and got most improved on her first year playing Volleyball. (she couldn't even serve when she started and now power serves with 75% success rate!) What is gonna happen to her? her Dr. really hasn't given us much in the way of details. She see's pediatric pulminology in 2 months. (quickest we could get it.) Any help would be greatly appreciated........also, to those with digestive problems........have you tried ingesting pro-biotics? Natures Sunshine makes a good one that is pleasant called Pro-Vitality. Tastes like coffee creamer but is non-dairy. Can be swallowed whole or opened and sprinkled on food.

hi i have 2 children with IgA defiency there both going to have a biospy on there bowl to see what they are allegic too there on the waiting list to get this done have you had a biospy on your bowl thay can tell you what you allegic to and chrones celiac milk wheat egg lot of things it is the only way they can do it at the moment my little girl has a paraite in her bowel but i had to stop the antibotic she is vomiting and has abdominal stomach pains and is dizzy she has side effects so i ring the doc on mon she has had the antobics before but i dont think she had side effects maybe i wasnt watching her it is called flagyl r it has heaps of side effects well i will go know cheers demisian

My memory of FLagy is that it's a powerful antibiotic. Some meds need very solid foods prior to taking the medication.

I have not had a bowl tests because I refuse. When I was younger I did have some colonoscopies. I had terrible experiences.

I'm not interested in any further invasive experiences.
I'm of the mind: Make it reasonable or forget it.

I'm in my 50's, so I can make that choice for myself.

I don't believe those invasive tests are needed most of the time anyway.

If a diet or treatment works; there is NO need to do a terrible test just so a doc can say; YES we have confirmation.

I understand you have young ones.
Since you are worried as a mother, you may take a very different position.