Hypothyroidism Support Group
Hypothyroidism is the disease state caused by insufficient production of thyrohormone by the thyroid gland. There are several distinct causes for chronic hypothyroidism, the most common being Hashimoto's thyroiditis and hypothyroidism following radioiodine therapy for hyperthyroidism. Advanced hypothyroidism may cause severe complications, the most serious one of which is...
cd3764
....to the other side.
That's what it feels like to me after a much-needed dose increase kicks in.
Hey everybody!
You may remember me sharing my story about my latest thyroid mis-adventure:
http://www.dailystrength.org/c/Hypothyroidism/forum/17439709-learned-hard-way-again
And I can tell you that I will NOT repeat that error again.
If I stick to the lab frequency I learned works best for me....and, of course, if my doctor adjusts my dose appropriately.....I am able to stay free of virtually all thyroid symptoms. My history has shown this time and time again.
Now, I'm not sure I would have escaped *all* symptoms this last go-round even if I *did* get labs in a timely manner.
I demonstrated some brain fog on the day I should have gotten labs. I didn't realize it back then but, my family actually called me on it.
How did they know? Well, I managed to burn my reading glasses as I was cooking dinner which also incorporated burning part of the dinner. I also burned the majority of the cookies I was baking (and I bake every week) I claimed to everyone that I couldn't talk and cook at the same time. These are the types of things I've done when pregnant and there's no chance of that.
Still, I know that getting my labs done later than usual resulted in the development of more symptoms than I would have developed if I got my labs done (and started my dose adjustment) on the schedule that has proven to work for me.
Yes, I probably would have dealt with slowed digestion for a few days but, I'm confident I wouldn't have dealt with several days of gas/bloating as I did.....or another several days of bone pain down my arms and into my hands.
I know I wouldn't have woken one night as I did with extreme leg pain.
Motivation went out the window....as did my usual energy. I was thinking about needing coffee at 11AM some days.
I gained 5 lbs. over the course of 3 days. However, over the course of the past week, I was passing more water than usual and those 5 lbs. are gone, thankfully.
In fact, the past week has consisted of nothing but improvements....not only with things I knew had been compromised but, with things I didn't realize had been compromised until I was back to what's normal for me.
For example, I usually buy 4 gallons of milk at the wholesale club. I could only carry one at a time during last month's trip. However, my trip to the store last week showed that I am back to being able to carry 2 in each hand.
I'm once again feeling my muscles build (vs. strain) as I use weights during my strength-training workouts.
And, my vision is back to being crystal-clear....and my night vision is better as well.
I'm back to my usual level of clutziness vs. the ridiculous level I'd been at lol
I never cease to be amazed at the far-reaching effects of thyroid function.
One thing I realized after bringing these things upon myself is the fact that dealing with the aftereffects of brain fog has eroded my confidence.
Over the course of the years I've dealt with thyroid disease, I've made many errors running my business as a result of brain fog. I've also made errors managing my personal finances. I know you can all relate to the feeling of mindlessness or "empty brain".
And, I have felt like a blubbering fool at times when trying to talk.....that's if I can wrap my head around the topic being discussed.
I'm grateful my oldest son understands - he didn't always.
Most recently, he was helping me with a technical aspect related to my business. He actually asked me if I was in my A game and, if I wasn't, he suggested we wait for future discussion. While I was touched by his compassion, I was frustrated with myself for even having to deal with not being the person I know myself to be.
Still, I realized earlier this week that I'm back to being "me" and it feels GOOD.
I see my doctor on Friday and I plan on telling her about the effects repeated instances of brain fog have had on me these past 6+ years I've been dealing with thyroid disease.
In fact, I plan on giving her a page from my symptoms journal that chronicles my most recent experiences.
I want her to see what maintaining optimal levels does for me......and what I go through when my levels aren't right.
It means the difference between sub-par functioning (and compromised ability to maintain a livelihood).....and feeling happy to be alive because I'm not dealing with thyroid symptoms.
I broke on through to the "other side" this week.
I am free from thyroid symptoms once more and it feels g-r-e-a-t :)))
I know you guys can relate to my experiences. I share them in the hopes it helps others in some way.
We are so in this together.
That's what it feels like to me after a much-needed dose increase kicks in.
Hey everybody!
You may remember me sharing my story about my latest thyroid mis-adventure:
http://www.dailystrength.org/c/Hypothyroidism/forum/17439709-learned-hard-way-again
And I can tell you that I will NOT repeat that error again.
If I stick to the lab frequency I learned works best for me....and, of course, if my doctor adjusts my dose appropriately.....I am able to stay free of virtually all thyroid symptoms. My history has shown this time and time again.
Now, I'm not sure I would have escaped *all* symptoms this last go-round even if I *did* get labs in a timely manner.
I demonstrated some brain fog on the day I should have gotten labs. I didn't realize it back then but, my family actually called me on it.
How did they know? Well, I managed to burn my reading glasses as I was cooking dinner which also incorporated burning part of the dinner. I also burned the majority of the cookies I was baking (and I bake every week) I claimed to everyone that I couldn't talk and cook at the same time. These are the types of things I've done when pregnant and there's no chance of that.
Still, I know that getting my labs done later than usual resulted in the development of more symptoms than I would have developed if I got my labs done (and started my dose adjustment) on the schedule that has proven to work for me.
Yes, I probably would have dealt with slowed digestion for a few days but, I'm confident I wouldn't have dealt with several days of gas/bloating as I did.....or another several days of bone pain down my arms and into my hands.
I know I wouldn't have woken one night as I did with extreme leg pain.
Motivation went out the window....as did my usual energy. I was thinking about needing coffee at 11AM some days.
I gained 5 lbs. over the course of 3 days. However, over the course of the past week, I was passing more water than usual and those 5 lbs. are gone, thankfully.
In fact, the past week has consisted of nothing but improvements....not only with things I knew had been compromised but, with things I didn't realize had been compromised until I was back to what's normal for me.
For example, I usually buy 4 gallons of milk at the wholesale club. I could only carry one at a time during last month's trip. However, my trip to the store last week showed that I am back to being able to carry 2 in each hand.
I'm once again feeling my muscles build (vs. strain) as I use weights during my strength-training workouts.
And, my vision is back to being crystal-clear....and my night vision is better as well.
I'm back to my usual level of clutziness vs. the ridiculous level I'd been at lol
I never cease to be amazed at the far-reaching effects of thyroid function.
One thing I realized after bringing these things upon myself is the fact that dealing with the aftereffects of brain fog has eroded my confidence.
Over the course of the years I've dealt with thyroid disease, I've made many errors running my business as a result of brain fog. I've also made errors managing my personal finances. I know you can all relate to the feeling of mindlessness or "empty brain".
And, I have felt like a blubbering fool at times when trying to talk.....that's if I can wrap my head around the topic being discussed.
I'm grateful my oldest son understands - he didn't always.
Most recently, he was helping me with a technical aspect related to my business. He actually asked me if I was in my A game and, if I wasn't, he suggested we wait for future discussion. While I was touched by his compassion, I was frustrated with myself for even having to deal with not being the person I know myself to be.
Still, I realized earlier this week that I'm back to being "me" and it feels GOOD.
I see my doctor on Friday and I plan on telling her about the effects repeated instances of brain fog have had on me these past 6+ years I've been dealing with thyroid disease.
In fact, I plan on giving her a page from my symptoms journal that chronicles my most recent experiences.
I want her to see what maintaining optimal levels does for me......and what I go through when my levels aren't right.
It means the difference between sub-par functioning (and compromised ability to maintain a livelihood).....and feeling happy to be alive because I'm not dealing with thyroid symptoms.
I broke on through to the "other side" this week.
I am free from thyroid symptoms once more and it feels g-r-e-a-t :)))
I know you guys can relate to my experiences. I share them in the hopes it helps others in some way.
We are so in this together.
This worries me to no end, what will happen next, or what else is going on that I just don't realize yet.
Why me.... they say god only gives us what we can handle, but I am not so sure I can handle, or manage this the way it needs to be. It is such a let down that we can not count on DR.'s to manage our problems. There seems to be so much we have to follow and manage ourselves. I just don't know if I can...ugh....
I have always been a thin person and I mean NEVER EVER had to diet in my whole life. I am now at least 25 lbs. over the weight I think I should be. I am so confused about the gluten thing and those types of things we need to watch being hypo....
I can not wait till the day I wake up and feel like I have energy, or even have all this going thru my mind.. I would like to be able to just think normal and not have to struggle with these chalanges (sp) geez brain fog.... cant spell either...
Anyway just a rant... Thanks for listening....
YES!! Thankful we are all in this together!!
I am still hoping and praying I feel better soon
I really needed this today...
Yes, achieving optimal levels is a project in and of itself. It took 15 months for me to get optimized.
But, that was only the beginning.
Maintaining optimal levels requires work, too......just as it does for diabetics and for people like my mother who take blood thinners.
(my mother gets her Coumadin dose adjusted as frequently as every week!)
Since my thyroid function remains erratic, my history has shown that I inevitably need a small dose adjustment every 10-12 wks. or so. This is what keeps me free from virtually all symptoms (or at least minimizes them to the point that a healthy person probably would accept them as part of a normal day)
My doctor has her thyroid patients get labs every 8 wks. because she knows thyroid levels can vacillate.....and she understands that each of us has his/her own "normal" levels within the ranges of normal.
My history has shown that I need labs a little more frequently than than every 8 wks. I consider it a small price to pay for feeling awesome most of the time.
For those of you in the beginning of your journeys, please try not to worry about the "what ifs".
Instead, slowly learn how to interpret your labs and rally for the proper care.
Once you are moving forward, you can slowly work towards optimizing other areas of your life.
Step by step, you'll get there.
In the meantime, celebrate the good days and forgive yourself for any sidesteps. It's all part of the journey.
If you keep trying, you'll make it. And, this stuff will become second nature to you.
Thankfully, we have so many wonderful members on here who have so much to share.....and the stuff they share is accurate and based upon medical resources.
We *can* climb the thyroid mountain.....one step at a time.
I am so thankful for all of you. I am not crazy, I am slowly realizing! Hypothyroidism is so confusing and serious.
I have been in such bad shape. I went back to my doctor, Tuesday. I was so confused...brain fog. I couldn't say what I wanted to. He dismissed the thyroid issue. He said " I don't think that your thryoid levels being a little low can cause all of these issues. " Me, I should have said to him, well you upped my dose of synthroid, so that in itself, tells me something is wrong. But I didn't, I have been going to him for 7 or 8 years. I trust him, but I'm beginning to see that he might not know know much about hypothyroidism.
Now he thinks that my hormone levels are off, and they may be. But this is what he tells me. (one of many symtoms) "Yes your stomach problems are probably from the many medications you take" I agreed. He said " I will do some more blood rests, including your hormone levels. Meanwhile, here is a low dose hormone prescription for now." I told him that I had been this sick for so long that I could wait 2-3 days more for the hormone tests. Too many prescriptions, but add another? I was so upset!!!!! I can not stand to take my medicine as it is.
When they call me with the results today or tomorrow, I am going to get my results of my thyroid test 2 weeks ago. I don't know why I can't work up the courage to ask for them.
I read what all of you post, and it's as if you are describing me!
I am feeling a little better, thanks to MButterfly! She provides so much imformation, that I am separating my symptoms and trying to ease each one, until the medication starts to help.
cd3764, I can so relate to your experiences! Thank you for posting them. All of you are saving the quality of my life!
I feel for ya Bantiehen67. You either may have to get another doc to take a look at your thyroid, or try to "finesse" you way into your current doctor's heart.
Why not get copies of your tests (they HAVE to give them to you under Hippa), and work out what increase you'd like to have. Then suggested it ever so meekly. If the doc says no, then say, "Well, you may be right, but why can't we try that?"
If the doc is reasonable. That'll work. You might also...and as an American Woman who was the bread-winner of my family this is humiliating...try taking a male family member with you or just a family member period. I have, on occasion, actually had my husband ask for an increase when I was declined. The misogynistic b*st*rd actually wrote out the script and handed it to HIM. Ugh.
The things we have to do to get treatment...
And no, you are NOT crazy, but oh boy do I know that feeling.
Called endo. He'll get back to me.
I haven't laughed in so long, it feels so good!
You have a wonderful sense of humor! So does everyone in this group...Hope all of you have a great day
My husband shoots the bull with him about fishing and "How bout them ___fill in the sports team___?" And voila, I get treatment.
I go in and start with my complaints and he's like, "No way."
I am not good at being demure.
My husband, he is so reserved. he sometimes stares at me like I am from a different planet. Usually I am vey direct and can state my opinions quite well. lol
But lately, I feel like a scrambled egg.
To everyone else, I thought I'd "condense" my latest-greatest history so you can see what less-than-optimal levels look like for me.....and also provide an update.
Firstly, these are the levels that represent my "comfort zone"....the range of levels that keep me free from thyroid symptoms
FT4 1.7 - 1.88 (.82-1.77)
FT3 3.8 - 4.4 (2.0-4.4)
These are the labs I had back in September:
FT4 1.58 (.82-1.77)
FT3 4.1 (1.0-4.4)
Some might look at those labs and say they're great. And they would be great for some people. However, my FT4 level back then was too low for me.
My FT4 level in September was 80% of range......and my optimal range of FT4 levels runs from 93% up to 110% of range.
That 13% difference between the low end of my optimal range of levels and my actual FT4 level back in September caused the following symptoms:
brain fog
loss of energy
loss of motivation
reduction in strength
reduction in stamina
constipation
gas
bloating
bone pain
blurry vision
reduced night vision
water retention
warm flashes
cold flashes
sense of detachment
Quite the number of symptoms for a level that is "only" 13% away from my optimal - huh?
Thankfully, no symptom lasted the entire time from when I started my dose adjustment until just now. Some symptoms lasted a couple of weeks.....others a couple of days.
Here are the results from Friday's labs:
FT4 1.88 (.82-1.77)
FT3 4.3 (2.0-4.4)
Obviously, my levels are back to optimal for me - yay!
My doctor's decision to increase my T4 dose by 6.25mcg was all it took to eliminate ALL of the symptoms I just shared.....and get me back to feeling awesome.
I had more symptoms this last time because I didn't get a needed dose adjustment when I should have gotten it.......all because I didn't go for labs when I normally would have.
I won't make that mistake again :)