Did you take a timed release, bm55, or just a regular dose?

It is a regular does 212mg of iron in 2 pills. Its called Ferrets from amazon. Like only taking 2 pills.

What kind of pulsatile tinnitus? Like, swoosh swoosh swoosh - you hear blood rushing through your neck, by your ear, or different? I have as just described for the past 2 years, but I'm told it is related to my lyme or POTS. I am very interested to know exactly what you experience and if you know why. I have been seeing a neuroENT for 2 years now, he can't figure it out. I have even had MRAs of my neck.

Its hearing my pulse in my ears with every beat of the heart. Would happen if getting excited, upset, or doing to much physically which hasn't been much at all. With this anemia, my systolic BP has been a bit elevated.

Pale fingernails, a bluish hue to the schlera of the eyes only in dim light.

My iron saturation was only 19% and should be 35% which means low iron. NP missed it or didn't know.

Glad you're finally getting some relief, bm55!!!

Sounds exactly like what I have, but I get flare ups of it, for a few weeks at a time, then it settles down and nearly goes away, then comes back again. It's only my left ear though. It bothers me most at night when watching tv, or during the night/early morning while laying down, and it gets really loud at times, roaring. It's very bothersome.

So you have a doctor saying this is related to iron deficiency?

My neuro ENT didn't know, he was the first one that had said he had seen in associated with lyme disease, turns out I had undiagnosed lyme. I have found several lyme patients that have this too.

Then I found out I have POTS (postural orthostatic tachycardia syndrome), and I have found some other POTS patients that get it too. One of them was told when the bp drops too low (and mine does when I sit/lay), that the body rushes blood to the brain and that is what I am hearing.

I have no idea, it seems like there are some logical explanations, but no one knows for sure what it is or what causes it. I can't take iron though, it feeds the infections. But any info you have on this topic (the pulsatile tinnitus) would be wonderful.

So if you sit the bp goes to low. That has got to be hard.

My story is that I had major bloodloss from aspirin in July. It just did not agree with me. Had transfusions. So had to take iron for 3 months to build up iron but should have never stopped it but had no insurance at the time, and bills piling up.

Went to an NP January 9th and she upped my levo. Started feeling really good after a couple of weeks, then started feeling very tired, pale etc. And would get that occasional pulsatile tinnitus. I thought oh no could I be low on iron.

So went and picked up bloodtests. Posted it on natural thyroid group yahoo, and they said my saturation was low and I need to take the iron and a big dose a day.

Only downfall is I wished I would have picked up bloodtests sooner before the tiredness came.

Have learned do not believe that being in range is okay as some doctors or NPs think.

Here's some info that might shed some light on what you're experiencing....eh...I think I should start another thread as it pertains to blood pressure and not tinnitus....