What is Hypothyroidism

Hypothyroidism is the disease state caused by insufficient production of thyrohormone by the thyroid gland. There are several distinct causes for chronic hypothyroidism, the most c...

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When I was 14 I was diagnosed with Central Hypothyroidism, which is a rare form of Hypothyroidism. Instead of my thyroid not producing hormones, my pituitary gland was not producing THS. It took the doctors a very long time to diagnose because my THS was low, not high like normal people suffering from hypothyroidism.
Now I am 18, and recently I was reading some articles online, because I was looking into losing weight with a thyroid problem, and I noticed that all the articles on central hypothyroidism only listed radiation and brain tumors as the causes of central hypothyroidism. I underwent MRI's at that time, and my parents told me they were clean. My doctors said they couldn't explain the cause. I was wondering if a) anyone here also has central hypothyroidism, and b) if anyone has heard of other causes
Thank you
Posted on 12/01/08, 01:12 pm
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Reply #1 - 12/02/08  2:07am
" Hi,
Bummer!
Well why is your doctor testing you for TSH if it is not a good indicator for the T3/ T4 levels? I would give him a big "DUH" when you see him next! Say geez doc, I just went on line and this website;
http://www.pituitarydisorder.net/c...
Said NOT to test the thyroid with TSH if you have a pituitary disfunction, but rather do a free T3/T4 test instead...(well they didn't exactly get it right...)
Here is the quote:
"Inadequate replacement doses of l-thyroxine often result in markedly subnormal TSH values. Therefore, TSH values are not reliable as an accurate reflection of thyroid status, and a free T4 or free T4 index must be used to adjust the replacement dose. However, as in primary hypothyroidism, when appropriately diagnosed and treated, management of central hypothyoidism can result in prompt resolution of symptoms."
You have to love the the lack of knowledge out there in the medical industry! No wonder they did a study and found that Google got the diagnoses right more often then doctors!
Find a good doctor that will do the right tests for you.
Hope this helps,
Jon "
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Reply #2 - 12/02/08  2:34am
" Here is a article from France that is interesting.
http://www.drlowe.com/france.htm


" Central Hypothyroidism: The incidence of central hypothyroidism, involving hypothalamic or pituitary dysfunction, in the USA population at large is about 0.00021% (12). Our research group has found that of 92 sequential unselected FMS patients, 40 patients (43.5%) had laboratory test results consistent with central hypothyroidism (16, 18). Other researchers have also reported high incidences of test results consistent with central hypothyroidism (20,21).

Thus, the incidence of primary hypothyroidism among FMS patients may be 2 to 10 or more times higher than in the USA population at large. The incidence of possible central hypothyroidism, however, may be 250,000 times higher. If we trust that thyroid function test results are reliable, we are compelled to reach a conclusion: If 10% of FMS patients have primary hypothyroidism, and 44% have central hypothyroidism, the total percentage of FMS patients with hypothyroidism is 54%.

They are indicating that the Central Hypothyroidism may be linked with CFS, and Thyroid Hormone Resistance. This is what I have, the body has trouble converting the T4 to T3. I take bioidentical hormone replacement of time released T3 Triiodoliothyronine(that is a mouth full of words!) The yare saying that there are is a much higher instance of your problem that the doctors know about.
Still haven't found a cause: head injury when you were young ( ask your mom if she droped you on your head....) ;o) I think you would know about radiation treatments...
alien abduction? Any dreams of small grey aliens? (sorry, couldn't resist)
That is all I came up with.
Take care,
Jon "
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